{"id":58898,"date":"2018-02-13T19:09:18","date_gmt":"2018-02-14T00:09:18","guid":{"rendered":"https:\/\/rarediseases.org\/one-pager-from-nord-on-opposition-to-right-to-try-act\/"},"modified":"2018-02-13T19:09:18","modified_gmt":"2018-02-14T00:09:18","slug":"one-pager-from-nord-on-opposition-to-right-to-try-act","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/one-pager-from-nord-on-opposition-to-right-to-try-act\/","title":{"rendered":"One-pager from NORD on Opposition to Right to Try Act"},"content":{"rendered":"

Washington, D.C., February 13, 2018<\/strong>\u2014The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, today followed up on the<\/span>\u00a0recent coalition\u00a0letter<\/a>\u00a0emphasizing the patient and provider community’s opposition to the Right to Try Act (H.R.878 and S.204) with a\u00a0one-pager<\/a>\u00a0which distills why the Right to Try Act simply will not increase access to promising investigational therapies for patients, and will instead remove critical patient protections.<\/p>\n

We once again urge you to oppose this legislation and join the patient community in requesting legislation that will actually help our community, not harm it.<\/div>\n","protected":false},"excerpt":{"rendered":"

Washington, D.C., February 13, 2018\u2014The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, today followed up on the\u00a0recent coalition\u00a0letter\u00a0emphasizing … <\/p>\n

Continue reading “One-pager from NORD on Opposition to Right to Try Act”<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"footnotes":""},"categories":[232,190],"tags":[],"class_list":["post-58898","post","type-post","status-publish","format-standard","hentry","category-advocacy","category-featured-news"],"acf":[],"_links":{"self":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/58898","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/comments?post=58898"}],"version-history":[{"count":0,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/58898\/revisions"}],"wp:attachment":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media?parent=58898"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/categories?post=58898"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/tags?post=58898"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}