{"id":58899,"date":"2018-02-25T00:04:05","date_gmt":"2018-02-25T05:04:05","guid":{"rendered":"https:\/\/rarediseases.org\/nord-joins-125-patient-organizations-in-support-of-medicaid-formulary-access\/"},"modified":"2018-02-25T00:04:05","modified_gmt":"2018-02-25T05:04:05","slug":"nord-joins-125-patient-organizations-in-support-of-medicaid-formulary-access","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/nord-joins-125-patient-organizations-in-support-of-medicaid-formulary-access\/","title":{"rendered":"NORD Joins 125 Patient Organizations in Support of Medicaid Formulary Access"},"content":{"rendered":"<p><span style=\"font-weight: 400;\"><strong>Washington, D.C., February 26, 2018<\/strong>\u2014The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, l<\/span>ast week joined 125 rare disease patient organizations in sending a letter to Medicaid Directors all across the country highlighting the importance of Medicaid formulary access for rare disease patients.<\/p>\n<p>With this letter, it is our hope to start a dialogue with\u00a0Medicaid\u00a0Directors regarding ways to interact with patient organizations and rare disease experts in order to improve patient access to innovative new medicines.<\/p>\n<p>We are extremely grateful to all those organizations that joined us and lent their voice. With many states\u00a0seeking to make changes to their\u00a0Medicaid\u00a0program through Section 1115 waivers, it is crucial to continue working together to make the voices of the rare disease community heard.<\/p>\n<p>To view or share an example of the letter, please\u00a0<a href=\"https:\/\/rarediseases.org\/wp-content\/uploads\/2018\/02\/AK-Rare-Disease-Organization-Letter-2.21.pdf\" target=\"_blank\" data-saferedirecturl=\"https:\/\/www.google.com\/url?hl=en&amp;q=https:\/\/rarediseases.org\/wp-content\/uploads\/2018\/02\/AK-Rare-Disease-Organization-Letter-2.21.pdf&amp;source=gmail&amp;ust=1519601229760000&amp;usg=AFQjCNH2JffJAmZLbS0FMkAR208N8fNh-g\" rel=\"noopener\">click here<\/a>.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Washington, D.C., February 26, 2018\u2014The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, last week joined 125 rare disease &hellip; <\/p>\n<p class=\"link-more\"><a href=\"https:\/\/rarediseases.org\/es\/nord-joins-125-patient-organizations-in-support-of-medicaid-formulary-access\/\" class=\"more-link\">Continue reading<span class=\"screen-reader-text\"> &#8220;NORD Joins 125 Patient Organizations in Support of Medicaid Formulary Access&#8221;<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"footnotes":""},"categories":[232,190],"tags":[1463,305,1464],"class_list":["post-58899","post","type-post","status-publish","format-standard","hentry","category-advocacy","category-featured-news","tag-formulary","tag-medicaid","tag-section-1115-waivers"],"acf":[],"_links":{"self":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/58899","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/comments?post=58899"}],"version-history":[{"count":0,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/58899\/revisions"}],"wp:attachment":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media?parent=58899"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/categories?post=58899"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/tags?post=58899"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}