{"id":58907,"date":"2018-03-21T12:00:35","date_gmt":"2018-03-21T16:00:35","guid":{"rendered":"https:\/\/rarediseases.org\/nord-joins-over-100-patient-and-provider-organizations-in-opposition-to-right-to-try\/"},"modified":"2018-03-21T12:00:35","modified_gmt":"2018-03-21T16:00:35","slug":"nord-joins-over-100-patient-and-provider-organizations-in-opposition-to-right-to-try","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/nord-joins-over-100-patient-and-provider-organizations-in-opposition-to-right-to-try\/","title":{"rendered":"NORD Joins Over 100 Patient and Provider Organizations in Opposition to Right to Try"},"content":{"rendered":"
In advance of another vote on the Right to Try Act\u00a0scheduled to occur later today, NORD joined\u00a0over 100 patient and provider organizations\u00a0in sending a renewed letter to the House of Representatives stating our opposition.<\/div>\n
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Despite having failed to pass the bill last week, the House is quickly moving to try again.<\/div>\n
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While the latest version contains considerable improvements to patient safety compared to the Senate version, it will still create\u00a0an unnecessary and less-safe alternative pathway\u00a0that would only generate confusion and false hope.<\/div>\n
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We support patients with serious and life-threatening diseases gaining access to potentially life-saving treatments, but the Right to Try Act simply will not accomplish this goal. Rather, it will only\u00a0diminish the Food and Drug Administration’s (FDA) ability to protect patients.<\/div>\n
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Consequently,\u00a0we remain in opposition\u00a0to this legislation. We are extremely grateful to all those organizations that joined us and lent their voice!<\/div>\n
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We will continue to make our voices heard as Congress considers the Right to Try Act. Please stay tuned for further updates.<\/div>\n
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To view or share the letter, please\u00a0click here<\/a>.<\/div>\n
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Why is Right to Try Bad for Patients?<\/div>\n<\/div>\n<\/div>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<\/div>\n
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Access to investigational therapies is already permitted through the FDA expanded access program. FDA currently\u00a0approves 99.7% of all expanded access requests\u00a0submitted by physicians and companies for patients with immediately life-threatening illnesses who cannot participate in clinical trials. Removing FDA from the process of obtaining investigational drugs, as Right to Try proposes, increases the risk of patient harm\u00a0and creates confusion.<\/div>\n
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For more information, check out our one-pager on the legislation\u00a0here!<\/a><\/div>\n<\/div>\n<\/div>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<\/div>\n
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In advance of another vote on the Right to Try Act\u00a0scheduled to occur later today, NORD joined\u00a0over 100 patient and provider organizations\u00a0in sending a renewed letter to the House of … <\/p>\n

Continue reading “NORD Joins Over 100 Patient and Provider Organizations in Opposition to Right to Try”<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"footnotes":""},"categories":[232,190],"tags":[1510],"class_list":["post-58907","post","type-post","status-publish","format-standard","hentry","category-advocacy","category-featured-news","tag-right-to-try-act"],"acf":[],"_links":{"self":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/58907","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/comments?post=58907"}],"version-history":[{"count":0,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/58907\/revisions"}],"wp:attachment":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media?parent=58907"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/categories?post=58907"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/tags?post=58907"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}