{"id":58910,"date":"2018-03-27T15:11:11","date_gmt":"2018-03-27T19:11:11","guid":{"rendered":"https:\/\/rarediseases.org\/neurology-reviews-and-nord-publish-the-2018-rare-neurological-disease-special-report\/"},"modified":"2018-03-27T15:11:11","modified_gmt":"2018-03-27T19:11:11","slug":"neurology-reviews-and-nord-publish-the-2018-rare-neurological-disease-special-report","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/neurology-reviews-and-nord-publish-the-2018-rare-neurological-disease-special-report\/","title":{"rendered":"Neurology Reviews\u00ae and NORD Publish the 2018 Rare Neurological Disease Special Report"},"content":{"rendered":"<p>&nbsp;<\/p>\n<p style=\"font-weight: 400;\"><strong>Parsippany<\/strong>\u00a0\u2013 March 26, 2018 \u2013 The 2018\u00a0<em>Rare Neurological Disease Special Report<\/em>\u00a0has been published by\u00a0<strong><em>Neurology Reviews<\/em><\/strong>\u00a0in collaboration with NORD, the National Organization for Rare Disorders, the leading independent nonprofit representing the 30 million Americans with rare diseases.<\/p>\n<p style=\"font-weight: 400;\">\u00a0<strong><em>Neurology Reviews<\/em><\/strong>\u00a0is pleased to provide the most current information and news about rare neurological diseases. The 4<sup>th<\/sup>\u00a0annual edition of the\u00a0<a href=\"https:\/\/www.neurologyreviews-digital.com\/neurologyreviews\/nord_supplement_0318\/MobilePagedReplica.action?pm=2&amp;folio=Cover#pg1\" data-saferedirecturl=\"https:\/\/www.google.com\/url?hl=en&amp;q=https:\/\/www.neurologyreviews-digital.com\/neurologyreviews\/nord_supplement_0318\/MobilePagedReplica.action?pm%3D2%26folio%3DCover%23pg1&amp;source=gmail&amp;ust=1522243555094000&amp;usg=AFQjCNFgZvTeDyw3iK6fh_Lb5V78QHZEeg\" rel=\"nofollow noopener\" target=\"_blank\"><strong><em>Rare Neurological Disease Special Report<\/em><\/strong><\/a>, the largest to date, exemplifies the ongoing needs of healthcare professionals for more clinical resources to aid in the diagnosis, treatment and management of patients with rare neurological disorders.<\/p>\n<p style=\"font-weight: 400;\">\u00a0The 2018\u00a0<em>Special Report<\/em>\u00a0features a stellar lineup of key opinion leaders and authors and provides a broad review of pending or newly approved therapies for epileptic encephalopathies, rare neuromuscular and neurodegenerative diseases, Batten disease, lipidosis, Lennox-Gastaut, Dravet and Hurler syndromes, myasthenia gravis; successes of genetic testing and gene therapies, and the need for a \u2018rare\u2019 distinction in specialty pharmacy is also presented. Dr. Bernard Maria, recipient of the 2018 Child Neurology Society Hower Award, highlights the impact of the \u2018Neurobiology of Disease in Children\u2019 symposia, a result of continuous NIH grants since 2001. Dr. Marshall Summar notes the challenging but important work being done at the first Center of Excellence at the Children\u2019s National Rare Disease Institute. NORD\u2019s federal policy outlook for 2018 is also elucidated.<\/p>\n<p style=\"font-weight: 400;\">\u00a0Elizabeth Katz, Publisher of\u00a0<a href=\"https:\/\/www.frontlinemedcom.com\/brands-posts\/neurology-reviews\/\" data-saferedirecturl=\"https:\/\/www.google.com\/url?hl=en&amp;q=https:\/\/www.frontlinemedcom.com\/brands-posts\/neurology-reviews\/&amp;source=gmail&amp;ust=1522243555094000&amp;usg=AFQjCNFPkSzJ7_F-Ig4qJMhjdBRLd4M7Yw\" rel=\"nofollow noopener\" target=\"_blank\"><strong><em>Neurology Reviews<\/em><\/strong><\/a>\u00a0and the NORD partnership liaison, said, \u201cThrough the support of numerous medical societies, academic institutions, patient advocacy groups, and pharmaceutical sponsors, healthcare professionals now have access to the latest clinical developments featured in these special issues.\u201d She continued, \u201cI am grateful for the efforts of the editorial staff, led by Glenn Williams, VP\/Group Editor, NORD, the Keck Graduate Institute, and many esteemed contributors, year after year, which expands the essential support needed by patients and caregivers of those affected by rare diseases.\u201d<\/p>\n<p style=\"font-weight: 400;\">\u00a0To learn more about the rare disease initiatives of\u00a0<strong><em>Neurology Reviews<\/em><\/strong>\u00a0and the NORD partnership, contact Elizabeth Katz at\u00a0<a href=\"tel:(973)%20224-7951\">973-224-7951<\/a>\u00a0or\u00a0<a href=\"mailto:ekatz@mdedge.com\"><strong>ekatz@mdedge.com<\/strong><\/a>. Details and information on all FMC\/MDedge digital brands, print publications, and custom programs are available at<strong>www.<\/strong><a href=\"https:\/\/www.frontlinemedcom.com\/\" data-saferedirecturl=\"https:\/\/www.google.com\/url?hl=en&amp;q=https:\/\/www.frontlinemedcom.com&amp;source=gmail&amp;ust=1522243555094000&amp;usg=AFQjCNEaSPEuz4dm7MLR4lgSiVHTnHI1jw\" rel=\"nofollow noopener\" target=\"_blank\"><strong>frontlinemedcom.com<\/strong><\/a>; visit weekly for the latest innovative programs and multimedia initiatives.<\/p>\n<p style=\"font-weight: 400;\"><strong>About\u00a0<\/strong><a href=\"https:\/\/www.mdedge.com\/neurologyreviews\" data-saferedirecturl=\"https:\/\/www.google.com\/url?hl=en&amp;q=https:\/\/www.mdedge.com\/neurologyreviews&amp;source=gmail&amp;ust=1522243555094000&amp;usg=AFQjCNGkpAyuIqdG1stlCdGYjdkzRKuZEg\" rel=\"nofollow noopener\" target=\"_blank\"><strong><em>Neurology Reviews<\/em><\/strong><\/a><strong>\u00ae<\/strong><\/p>\n<p style=\"font-weight: 400;\"><a href=\"https:\/\/www.mdedge.com\/neurologyreviews\" data-saferedirecturl=\"https:\/\/www.google.com\/url?hl=en&amp;q=https:\/\/www.mdedge.com\/neurologyreviews&amp;source=gmail&amp;ust=1522243555094000&amp;usg=AFQjCNGkpAyuIqdG1stlCdGYjdkzRKuZEg\" rel=\"nofollow noopener\" target=\"_blank\"><strong><em>Neurology Reviews<\/em><\/strong><\/a><strong><em>\u00a0<\/em><\/strong>celebrates its 25th anniversary! Launched in 1993,\u00a0<a href=\"https:\/\/www.mdedge.com\/neurologyreviews\" data-saferedirecturl=\"https:\/\/www.google.com\/url?hl=en&amp;q=https:\/\/www.mdedge.com\/neurologyreviews&amp;source=gmail&amp;ust=1522243555094000&amp;usg=AFQjCNGkpAyuIqdG1stlCdGYjdkzRKuZEg\" rel=\"nofollow noopener\" target=\"_blank\"><em>Neurology Reviews<\/em><\/a>\u00a0is the first and original news source in neurology and has a history of providing independent, unbiased news to neurologists and clinicians interested in the neurosciences.\u00a0<strong><em><a href=\"https:\/\/www.mdedge.com\/neurologyreviews\" data-saferedirecturl=\"https:\/\/www.google.com\/url?hl=en&amp;q=https:\/\/www.mdedge.com\/neurologyreviews&amp;source=gmail&amp;ust=1522243555094000&amp;usg=AFQjCNGkpAyuIqdG1stlCdGYjdkzRKuZEg\" rel=\"nofollow noopener\" target=\"_blank\">Neurology Reviews<\/a>\u00a0<\/em><\/strong>covers medical conferences and clinical research findings, as well as specialty trends, expert opinions, and the breadth of influences affecting the practice of neurology. Experienced medical journalists deliver timely, relevant, and insightful news affecting the practice of neurology and all its subspecialties. In addition to the monthly print issue reaching over 25,000 neurologists and clinicians interested in neuroscience, the\u00a0<a href=\"https:\/\/www.mdedge.com\/neurologyreviews\" data-saferedirecturl=\"https:\/\/www.google.com\/url?hl=en&amp;q=https:\/\/www.mdedge.com\/neurologyreviews&amp;source=gmail&amp;ust=1522243555094000&amp;usg=AFQjCNGkpAyuIqdG1stlCdGYjdkzRKuZEg\" rel=\"nofollow noopener\" target=\"_blank\"><strong><em>Neurology Reviews<\/em><\/strong><\/a><em>\u00a0<\/em>website,\u00a0<a href=\"https:\/\/www.mdedge.com\/neurologyreviews\" data-saferedirecturl=\"https:\/\/www.google.com\/url?hl=en&amp;q=https:\/\/www.mdedge.com\/neurologyreviews&amp;source=gmail&amp;ust=1522243555094000&amp;usg=AFQjCNGwaxw6C_fd0hBM20OdQ4Bs_42F-w\" rel=\"nofollow noopener\" target=\"_blank\">www.mdedge.com\/neurologyreviews<\/a>, features online ahead of print conference reporting, audio and video interviews, disease-specific microsites, self-assessment quizzes, patient handouts, supplements, sponsored educational programs, a calendar of relevant medical meetings, and, a career center listing job openings around the country.\u00a0<em>Neurology Reviews<\/em>\u00a0provides its content in print, through an App, on a mobile-friendly website, in digital editions, and through targeted e-blasts.<\/p>\n<p style=\"font-weight: 400;\"><strong>About\u00a0<\/strong><a href=\"https:\/\/www.frontlinemedcom.com\/\" data-saferedirecturl=\"https:\/\/www.google.com\/url?hl=en&amp;q=https:\/\/www.frontlinemedcom.com&amp;source=gmail&amp;ust=1522243555094000&amp;usg=AFQjCNEaSPEuz4dm7MLR4lgSiVHTnHI1jw\" rel=\"nofollow noopener\" target=\"_blank\"><strong>Frontline Medical Communications<\/strong><\/a><\/p>\n<p style=\"font-weight: 400;\"><a href=\"https:\/\/www.frontlinemedcom.com\/\" data-saferedirecturl=\"https:\/\/www.google.com\/url?hl=en&amp;q=https:\/\/www.frontlinemedcom.com\/&amp;source=gmail&amp;ust=1522243555094000&amp;usg=AFQjCNGat8Tgr_bPf55aoGLPmlnRd4vAiQ\" rel=\"nofollow noopener\" target=\"_blank\">Frontline Medical Communications<\/a>\u00a0Inc. is one of the healthcare industry\u2019s largest medical communications companies\u00a0and a leader in digital, print, and live events. The Company leads in HCP-level targeting and is ranked 1<sup>st<\/sup>\u00a0in combined web and print engagements. With\u00a0<a href=\"https:\/\/www.mdedge.com\/\" data-saferedirecturl=\"https:\/\/www.google.com\/url?hl=en&amp;q=https:\/\/www.mdedge.com\/&amp;source=gmail&amp;ust=1522243555094000&amp;usg=AFQjCNERm0CSW4-AB3Sq4McFo2xuPG2cWQ\" rel=\"nofollow noopener\" target=\"_blank\"><strong>MDedge<\/strong><\/a>\u2122, our state-of-the-art integrated web portal, and audited email database, FMC meets the marketing challenges of our clients with superior reach, optimal sponsorship opportunities, and flexible advertising programs. We reach 1.3 million+ physicians, NPs, PAs, HCPs, and key healthcare decision makers through more than 35 media brands serving 25 distinct markets. Print reach surpasses 850,000 and extends digitally, giving providers immediate content access through interactive websites, newsletters, mobile apps, digital editions, and social media platforms. FMC delivers award-winning indexed, clinical reviews, practice and policy information, and medical news daily from on-site reporting at major medical meetings; many in collaboration with notable societies, medical associations, and opinion leaders. FMC produces live events, digital click-for-credit, and CME through affiliation with Global Academy for Medical Education, LLC (<a href=\"https:\/\/www.globalacademycme.com\/\" data-saferedirecturl=\"https:\/\/www.google.com\/url?hl=en&amp;q=https:\/\/www.globalacademycme.com\/&amp;source=gmail&amp;ust=1522243555094000&amp;usg=AFQjCNEaYJgglDDxKzbJv8wPR1zLwUHP4g\" rel=\"nofollow noopener\" target=\"_blank\">globalacademycme.com<\/a>) and Hemedicus (<a href=\"https:\/\/www.hemedicus.com\/\" data-saferedirecturl=\"https:\/\/www.google.com\/url?hl=en&amp;q=https:\/\/www.hemedicus.com&amp;source=gmail&amp;ust=1522243555094000&amp;usg=AFQjCNF0pz9YbnILOOEqepCja7L-NufqfQ\" rel=\"nofollow noopener\" target=\"_blank\">www.hemedicus.com<\/a>). Visit\u00a0<a href=\"https:\/\/www.frontlinemedcom.com\/\" data-saferedirecturl=\"https:\/\/www.google.com\/url?hl=en&amp;q=https:\/\/www.frontlinemedcom.com&amp;source=gmail&amp;ust=1522243555094000&amp;usg=AFQjCNEaSPEuz4dm7MLR4lgSiVHTnHI1jw\" rel=\"nofollow noopener\" target=\"_blank\">frontlinemedcom.com<\/a>\u00a0|\u00a0<a href=\"https:\/\/twitter.com\/FrontlineMedCom\" data-saferedirecturl=\"https:\/\/www.google.com\/url?hl=en&amp;q=https:\/\/twitter.com\/FrontlineMedCom&amp;source=gmail&amp;ust=1522243555094000&amp;usg=AFQjCNGa-HMUWoGCFzHVvX6ckabr4ZdUXg\" rel=\"nofollow noopener\" target=\"_blank\">Twitter<\/a>|<a href=\"https:\/\/www.facebook.com\/FrontlineMedicalCommunications\/\" data-saferedirecturl=\"https:\/\/www.google.com\/url?hl=en&amp;q=https:\/\/www.facebook.com\/FrontlineMedicalCommunications\/&amp;source=gmail&amp;ust=1522243555094000&amp;usg=AFQjCNEmnRht9j_ta1Xjp9syMYLZhZaAqw\" rel=\"nofollow noopener\" target=\"_blank\">Facebook<\/a>|<a href=\"https:\/\/www.linkedin.com\/company\/quadrant-healthcom-inc-?trk=company_logo\" data-saferedirecturl=\"https:\/\/www.google.com\/url?hl=en&amp;q=https:\/\/www.linkedin.com\/company\/quadrant-healthcom-inc-?trk%3Dcompany_logo&amp;source=gmail&amp;ust=1522243555095000&amp;usg=AFQjCNHAjGMgp2KMzG6EJkdHIDhyyCCnJw\" rel=\"nofollow noopener\" target=\"_blank\">LinkedIn<\/a>.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>&nbsp; Parsippany\u00a0\u2013 March 26, 2018 \u2013 The 2018\u00a0Rare Neurological Disease Special Report\u00a0has been published by\u00a0Neurology Reviews\u00a0in collaboration with NORD, the National Organization for Rare Disorders, the leading independent nonprofit representing &hellip; <\/p>\n<p class=\"link-more\"><a href=\"https:\/\/rarediseases.org\/es\/neurology-reviews-and-nord-publish-the-2018-rare-neurological-disease-special-report\/\" class=\"more-link\">Continue reading<span class=\"screen-reader-text\"> &#8220;Neurology Reviews\u00ae and NORD Publish the 2018 Rare Neurological Disease Special Report&#8221;<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"footnotes":""},"categories":[190,191,192,504],"tags":[557,1517,1513,1512,277,1516,1515,1518,1511,965,1514],"class_list":["post-58910","post","type-post","status-publish","format-standard","hentry","category-featured-news","category-medical","category-patients-members","category-press-releases","tag-batten-disease","tag-dravet-and-hurler-syndromes","tag-epileptic-encephalopathies","tag-frontline-medical-communications","tag-genetic-testing","tag-lennox-gastaut","tag-lipidosis","tag-myasthenia-gravis","tag-neurology","tag-neurology-reviews","tag-rare-neuromuscular-and-neurodegenerative-diseases"],"acf":[],"_links":{"self":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/58910","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/comments?post=58910"}],"version-history":[{"count":0,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/58910\/revisions"}],"wp:attachment":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media?parent=58910"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/categories?post=58910"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/tags?post=58910"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}