{"id":58932,"date":"2018-05-24T14:25:48","date_gmt":"2018-05-24T18:25:48","guid":{"rendered":"https:\/\/rarediseases.org\/new-research-funding-opportunities-available-from-nord\/"},"modified":"2018-05-24T14:25:48","modified_gmt":"2018-05-24T18:25:48","slug":"new-research-funding-opportunities-available-from-nord","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/new-research-funding-opportunities-available-from-nord\/","title":{"rendered":"New Research Funding Opportunities Available from NORD"},"content":{"rendered":"<p style=\"text-align: center;\"><b>All U.S. and international researchers are encouraged to apply\u00a0<\/b><b>by the initial application deadline of July 16, 2018<\/b><\/p>\n<p>&nbsp;<\/p>\n<p><b>Washington, D.C., Ma<\/b><b>y 24, 2018<\/b><span style=\"font-weight: 400;\"> &#8211; The National Organization for Rare Disorders (NORD), the leading independent, nonprofit organization committed to the identification, treatment, and cure of rare disorders, announces the availability of new research grants to support the study of eight rare diseases. The initial application deadline is July 16, 2018.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">NORD\u2019s Rare Disease Research Grant Program is accepting proposals for the study of:<\/span><\/p>\n<ul>\n<ul>\n<li style=\"font-weight: 400;\"><b>Alveolar Capillar<\/b><b>y Dysplasia with Misalignment of the Pulmonary Veins (ACD\/MPV)<\/b><span style=\"font-weight: 400;\"> \u2013 One (1) grant of up to $50,000 U.S. for scientific and\/or clinical research studies related to Alveolar Capillary Dysplasia with Misalignment of the Pulmonary Veins (ACD\/MPV).<\/span><\/li>\n<li style=\"font-weight: 400;\"><b>Appendix Cancer and Pseudomyxoma Peritonei (PMP)<\/b><span style=\"font-weight: 400;\"> \u2013 Two (2) grants of up to $50,000 U.S. for scientific and\/or clinical research studies related to Appendix Cancer and\/or Pseudomyxoma Peritonei (PMP).<\/span><\/li>\n<li style=\"font-weight: 400;\"><b>Familial Hypercholesterolemia<\/b><span style=\"font-weight: 400;\"> \u2013 One (1) grant of up to $50,000 U.S. for scientific and\/or clinical research studies related to Familial Hypercholesterolemia.<\/span><\/li>\n<li style=\"font-weight: 400;\"><b>Malonic Aciduria<\/b><span style=\"font-weight: 400;\"> \u2013 One (1) grant of up to $80,000 U.S. for scientific and\/or clinical research studies related to Familial Hypercholesterolemia.<\/span><\/li>\n<li style=\"font-weight: 400;\"><b>New-Onset Refractory Status Epilepticus (NORSE) and Febrile Infection-Related Epilepsy Syndrome (FIRES)<\/b><span style=\"font-weight: 400;\"> \u2013 Grant(s) of up to $100,000 U.S. for scientific research studies related to New-Onset Refractory Status Epilepticus (NORSE) and\/or Febrile Infection-Related Epilepsy Syndrome (FIRES).<\/span><\/li>\n<li style=\"font-weight: 400;\"><b>PACS1-Related Syndrome (Schuurs-Hoeijmakers Syndrome)<\/b><span style=\"font-weight: 400;\"> \u2013 One (1) grant of up to $45,000 U.S. for scientific and\/or clinical research studies related to PACS1-Related Syndrome (Schuurs-Hoeijmakers Syndrome).<\/span><\/li>\n<li style=\"font-weight: 400;\"><b>Primary Orthostatic Tremor<span style=\"font-weight: 400;\"> &#8211; One (1) grant of up to $41,000 U.S. for s<\/span><span style=\"font-weight: 400;\">cientific and\/or clinical research studies related to Primary Orthostatic Tremor.<\/span><\/b><\/li>\n<\/ul>\n<\/ul>\n<p><span style=\"font-weight: 400;\">NORD encourages all U.S. and international researchers interested in studying one or more of these diseases t<\/span><span style=\"font-weight: 400;\">o <\/span><a href=\"https:\/\/rarediseases.org\/for-clinicians-and-researchers\/research-opportunities\/requests-proposals\/\"><span style=\"font-weight: 400;\">click here<\/span><\/a><span style=\"font-weight: 400;\"> to re<\/span><span style=\"font-weight: 400;\">view the full application guidelines detailed in the request for proposals.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">NORD\u2019s Rare Disease Research Grant Program provides seed funding to academic scientists for translational or clinical studies related to the development of potential new diagnostics or treatments for rare disease. Over the years, NORD grants have led to the development of two FDA-approved treatments and numerous journal articles. More than 150 grants have been awarded nearing $7 million in approved funding since the program\u2019s launch in 1989. <\/span><\/p>\n<p><span style=\"font-weight: 400;\">\u201cWe are so thankful for the generous support of our donors year after year,\u201d said Vanessa Boulanger, NORD\u2019s Director of Research Programs. \u201cCommunity-funded grants play a pivotal role in accelerating foundational and innovative research for rare conditions. \u00a0By building strong partnerships within the community and with leading scientific experts, NORD fosters collaboration, so that together, we drive the development of discoveries that save lives.\u201d<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Grants are made possible by allies in the rare disease community that have generously donated into NORD\u2019s research fund. Each year, Lundbeck raises awareness and support, in partnership with NORD, through their annual Raise Your Hand Campaign, which runs during the month of February to support Rare Disease Day. We are proud to acknowledge Lundbeck\u2019s charitable donation for NORD\u2019s 2018 Rare Disease Research Grant cycle. <\/span><\/p>\n<p><span style=\"font-weight: 400;\">For more information about NORD\u2019s Rare Disease Research Grant Program and rare disease research funding opportunities, visit: <\/span><a href=\"https:\/\/rarediseases.org\/research\"><span style=\"font-weight: 400;\">https:\/\/rarediseases.org\/research<\/span><\/a><span style=\"font-weight: 400;\">.<\/span><\/p>\n<p style=\"text-align: center;\"><span style=\"font-weight: 400;\"># # #<\/span><\/p>\n","protected":false},"excerpt":{"rendered":"<p>All U.S. and international researchers are encouraged to apply by the initial application deadline of July 16, 2018<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"footnotes":""},"categories":[190,504,193],"tags":[1615,1616,1617,1614,1471,1452,1618,1619,1621,630,383,1620],"class_list":["post-58932","post","type-post","status-publish","format-standard","hentry","category-featured-news","category-press-releases","category-research","tag-alveolar-capillary-dysplasia-with-misalignment-of-the-pulmonary-veins","tag-appendix-cancer","tag-familial-hypercholesterolemia","tag-grant","tag-grants","tag-malonic-aciduria","tag-new-onset-refractory-status-epilepticus","tag-norse","tag-primary-orthostatic-tremor","tag-pseudomyxoma-peritonei","tag-research","tag-schuurs-hoeijmakers-syndrome"],"acf":[],"_links":{"self":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/58932","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/comments?post=58932"}],"version-history":[{"count":0,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/58932\/revisions"}],"wp:attachment":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media?parent=58932"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/categories?post=58932"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/tags?post=58932"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}