{"id":58951,"date":"2018-08-23T18:11:58","date_gmt":"2018-08-23T22:11:58","guid":{"rendered":"https:\/\/rarediseases.org\/fibrolamella-cancer-foundation-thanks-nord-for-help-with-ssa-compassionate-allowance-listing\/"},"modified":"2018-08-23T18:11:58","modified_gmt":"2018-08-23T22:11:58","slug":"fibrolamella-cancer-foundation-thanks-nord-for-help-with-ssa-compassionate-allowance-listing","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/fibrolamella-cancer-foundation-thanks-nord-for-help-with-ssa-compassionate-allowance-listing\/","title":{"rendered":"Fibrolamella Cancer Foundation Thanks NORD for Help with SSA Compassionate Allowance Listing"},"content":{"rendered":"<p style=\"text-align: center;\"><em>The following is a guest blog post from John Hopper,\u00a0President of the Fibrolamellar Cancer Foundation, a NORD Member Organization<\/em>.<\/p>\n<hr \/>\n<p><span style=\"font-weight: 400;\">Huge thanks to NORD leadership! Fibrolamellar Cancer was just approved as one of the <a href=\"https:\/\/www.ssa.gov\/compassionateallowances\/\" target=\"_blank\" rel=\"noopener nofollow\">Social Security Administration Compassionate Allowance<\/a> diseases. \u00a0Why? Because great people like Mary Dunkle and Paul Melmeyer knew this was important to the <a href=\"https:\/\/fibrofoundation.org\/\" target=\"_blank\" rel=\"noopener nofollow\">Fibrolamellar Cancer Foundation (FCF)<\/a> and reached out, encouraging us to consider applying. \u00a0We would have had no clue how to navigate this process without NORD\u2019s help. Bonus was that a key member of the NCATS was at the presentation FCF gave to the SSA. Paul helped set up a one-on-one conversation with myself and the NCATS leader which has led to the potential of working closely with this organization.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">This is the type of help and guidance we <a href=\"https:\/\/rarediseases.org\/for-patient-organizations\/join-membership-network\/value-membership\/\" target=\"_blank\" rel=\"noopener\">benefit<\/a> from by being a NORD member organization. \u00a0From the FCF and all the adolescents and young adults fighting fibrolamellar, thanks to all of you at NORD who were instrumental in this recent approval \u2013 and for all you do.<\/span><\/p>\n","protected":false},"excerpt":{"rendered":"<p>The following is a guest blog post from John Hopper,\u00a0President of the Fibrolamellar Cancer Foundation, a NORD Member Organization. Huge thanks to NORD leadership! Fibrolamellar Cancer was just approved as &hellip; <\/p>\n<p class=\"link-more\"><a href=\"https:\/\/rarediseases.org\/es\/fibrolamella-cancer-foundation-thanks-nord-for-help-with-ssa-compassionate-allowance-listing\/\" class=\"more-link\">Continue reading<span class=\"screen-reader-text\"> &#8220;Fibrolamella Cancer Foundation Thanks NORD for Help with SSA Compassionate Allowance Listing&#8221;<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"footnotes":""},"categories":[192],"tags":[1398,1713,1712,261,368,265,1714,798,315,1711,1397],"class_list":["post-58951","post","type-post","status-publish","format-standard","hentry","category-patients-members","tag-compassionate-allowances","tag-fibrolamellar-cancer","tag-fibrolamellar-cancer-foundation","tag-mary-dunkle","tag-ncats","tag-nih","tag-paul-melmyer","tag-rare-cancer","tag-rare-disease","tag-social-security-administration","tag-ssa"],"acf":[],"_links":{"self":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/58951","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/comments?post=58951"}],"version-history":[{"count":0,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/58951\/revisions"}],"wp:attachment":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media?parent=58951"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/categories?post=58951"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/tags?post=58951"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}