{"id":58956,"date":"2018-09-12T20:35:33","date_gmt":"2018-09-13T00:35:33","guid":{"rendered":"https:\/\/rarediseases.org\/three-big-reasons-not-to-miss-the-2018-nord-rare-summit\/"},"modified":"2022-12-02T08:11:55","modified_gmt":"2022-12-02T13:11:55","slug":"three-big-reasons-not-to-miss-the-2018-nord-rare-summit","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/three-big-reasons-not-to-miss-the-2018-nord-rare-summit\/","title":{"rendered":"Three Big Reasons Not to Miss the 2018 NORD Rare Summit"},"content":{"rendered":"\n\n\n
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1. Raves About the Rare Summit<\/strong><\/div>\n
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“Inspiring and Informative. Brought me to the realization that though I may feel my \u2018disease\u2019 is the only one \u2013 there are many who have their own struggles.”<\/div>\n
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–Research Nurse III, Cincinnati Children\u2019s Hospital Medical Center<\/div>\n
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“Incredibly valuable meeting to connect stakeholders, share information and provide inspiration and motivation.”<\/div>\n
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–Sanofi-Genzyme<\/div>\n
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“The NORD Summit was the singular opportunity that I have had to interact and network with others from patient orgs dealing with rare diseases. I learned as much in the networking breaks as I learned in the sessions. I leave with new knowledge I don\u2019t think I could have gained anywhere else.”<\/div>\n
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–Director of Research, Hemophilia Federation of America<\/div>\n<\/div>\n<\/div>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<\/div>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n\n\n\n
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2. Posters! Posters! Posters!<\/strong><\/div>\n
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Our poster session will be bigger than ever, with 80 presenters sharing abstracts on the theme of \u201cLife-Transforming Treatments.\u201d Last year’s poster session was insightful and inspiring, and this year’s will feature even more information.<\/div>\n<\/div>\n<\/div>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<\/div>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n\n\n\n
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3. Network and Make Connections<\/strong><\/div>\n
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NORD Rare Summit attendees will have\u00a0plenty\u00a0of opportunities to make connections. 14 Lunch & Learn sessions will be available during the two-day event for attendees to take advantage of meaningful round table discussions in a casual setting. In addition, attendees will have the chance to use our brand-new networking app which will allow them to set up 1:1 meetings, navigate the conference, and more! More information coming soon.<\/div>\n<\/div>\n<\/div>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<\/div>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n\n\n\n
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Plus there’s a party!<\/strong><\/div>\n<\/div>\n<\/div>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<\/div>\n
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NORD Rare Summit registrants are invited to attend \u201cCocktails and Conversation with Children\u2019s National Rare Disease Institute\u201d on Tuesday, October 16 at 6 pm.\u00a0Marshall Summar, MD, and members of the Children\u2019s National Rare Disease Institute are looking forward to welcoming all and celebrating the Summit and the work going on in the Institute.<\/div>\n
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The registration link for the reception is:\u00a0https:\/\/childrensnational.org\/NORD2018<\/div>\n<\/div>\n<\/div>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<\/div>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n\n\n\n
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1. Raves About the Rare Summit “Inspiring and Informative. Brought me to the realization that though I may feel my \u2018disease\u2019 is the only one \u2013 there are many who … <\/p>\n

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