{"id":58974,"date":"2019-01-03T14:51:17","date_gmt":"2019-01-03T19:51:17","guid":{"rendered":"https:\/\/rarediseases.org\/nord-expands-and-enhances-its-rare-disease-database-a-primary-resource-for-millions-of-people-affected-by-rare-diseases\/"},"modified":"2019-01-03T14:51:17","modified_gmt":"2019-01-03T19:51:17","slug":"nord-expands-and-enhances-its-rare-disease-database-a-primary-resource-for-millions-of-people-affected-by-rare-diseases","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/nord-expands-and-enhances-its-rare-disease-database-a-primary-resource-for-millions-of-people-affected-by-rare-diseases\/","title":{"rendered":"NORD Expands and Enhances its Rare Disease Database\u00ae, a Primary Resource for Millions of People Affected by Rare Diseases"},"content":{"rendered":"<p><b>Washington, D.C., January 3, 2019 <\/b><span style=\"font-weight: 400;\">\u2013 Today, the National Organization for Rare Disorders (NORD) announced the completion of extensive additions and improvements to its Rare Disease Database, which serves as a valuable resource for patients, families and caregivers in need of easy-to-understand information about rare diseases. The enhancements to the database and to the NORD website, which receives close to one million visits a month, are designed to improve the community&#8217;s ability to find what they need more easily. \u00a0<img loading=\"lazy\" decoding=\"async\" class=\"alignright size-medium wp-image-37261\" src=\"https:\/\/rarediseases.org\/wp-content\/uploads\/2019\/01\/anthem-fdn-logo-300x118.png\" alt=\"\" width=\"300\" height=\"118\" \/><\/span><\/p>\n<p><span style=\"font-weight: 400;\">Providing reliable information to the rare disease community has long been central to NORD\u2019s <\/span><span style=\"font-weight: 400;\">mission. \u00a0In addition, ensuring that the community has a good user experience while getting this information is vitally important. With a grant from the Anthem Foundation, NORD was able to make improvements to the functionality of the database and website and to accommodate the expansion of reporting. \u00a0These updates include:<\/span><\/p>\n<ul>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">The addition of close to 7,000 rare disease pages provided by the National Institutes of Health\u2019s (NIH) Genetic and Rare Diseases Information Center<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">A cleaner results page that includes a preview of each result\u2019s contents when available \u00a0<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Advanced search options for exact matches and the ability to search results by category<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">The incorporation of \u201cDid you mean?\u201d recommendations into the search results if the system suspects that you may have spelled a word incorrectly<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">The addition of 45 new NORD Rare Disease Reports<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">A listing of all 7,000 diseases recognized as rare by NIH<\/span><\/li>\n<\/ul>\n<p><span style=\"font-weight: 400;\">\u201cWe are excited to be providing information that covers all rare diseases currently recognized by NIH. It\u2019s important to us that we represent and support the entire rare disease community and its needs,\u201d said Sika Dunyoh, Director of Education Programs for NORD. \u00a0\u201cThe Anthem Foundation\u2019s generosity has also allowed us to create a more user-friendly interface that will benefit patients and caregivers as well as researchers, medical professionals, public policy officials, and members of the media who are seeking information about rare diseases.\u201d<\/span><\/p>\n<p><span style=\"font-weight: 400;\">The information about specific rare diseases on the NORD website (<\/span><a href=\"https:\/\/rarediseases.org\"><span style=\"font-weight: 400;\">www.rarediseases.org<\/span><\/a><span style=\"font-weight: 400;\">) is free and available to everyone, accessible either online or in downloadable format. <\/span><\/p>\n<p style=\"text-align: center;\"><span style=\"font-weight: 400;\"># \u00a0\u00a0\u00a0\u00a0#\u00a0 \u00a0 #<\/span><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Washington, D.C., January 3, 2019 \u2013 Today, the National Organization for Rare Disorders (NORD) announced the completion of extensive additions and improvements to its Rare Disease Database, which serves as &hellip; <\/p>\n<p class=\"link-more\"><a href=\"https:\/\/rarediseases.org\/es\/nord-expands-and-enhances-its-rare-disease-database-a-primary-resource-for-millions-of-people-affected-by-rare-diseases\/\" class=\"more-link\">Continue reading<span class=\"screen-reader-text\"> &#8220;NORD Expands and Enhances its Rare Disease Database\u00ae, a Primary Resource for Millions of People Affected by Rare Diseases&#8221;<\/span><\/a><\/p>\n","protected":false},"author":47,"featured_media":12598,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"footnotes":""},"categories":[190,504],"tags":[1759,1760,1831,1830,498,1278,265,225,1209,1294,1385],"class_list":["post-58974","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-featured-news","category-press-releases","tag-anthem","tag-anthem-foundation","tag-gard","tag-genetic-and-rare-diseases-information-center","tag-national-institutes-of-health","tag-national-organization-for-rare-disorders","tag-nih","tag-nord","tag-rare-disease-database","tag-rare-disease-reports","tag-sika-dunyoh"],"acf":[],"_links":{"self":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/58974","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/users\/47"}],"replies":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/comments?post=58974"}],"version-history":[{"count":0,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/58974\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media\/12598"}],"wp:attachment":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media?parent=58974"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/categories?post=58974"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/tags?post=58974"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}