{"id":59031,"date":"2019-07-18T13:12:07","date_gmt":"2019-07-18T17:12:07","guid":{"rendered":"https:\/\/rarediseases.org\/rare-caregiver-respite-leahs-story\/"},"modified":"2019-07-18T13:12:07","modified_gmt":"2019-07-18T17:12:07","slug":"rare-caregiver-respite-leahs-story","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/rare-caregiver-respite-leahs-story\/","title":{"rendered":"Rare Caregiver Respite: Leah&#8217;s Story"},"content":{"rendered":"<p><img loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-40199 alignleft\" src=\"https:\/\/rarediseases.org\/wp-content\/uploads\/2019\/07\/nord-rare-caregiver-leah-story-300x300.jpg\" alt=\"\" width=\"300\" height=\"300\" \/>Earlier this year, NORD launched the first-of-its-kind Rare Caregiver Respite Program, designed to enable caregivers to take a much-deserved respite. Leah Schust, caregiver for her young son and one of the first to participate in the new program, shared how she recently spent her break.<\/p>\n<p>\u201cI was asked to be in my best friend&#8217;s wedding in Providence, RI and had to travel away from my home and my son for 4 days and 3 nights. My husband works full time so if we did not have this respite grant, he would have either had to take time off from work to stay home with Ben or I would have had to decline the opportunity,\u201d Leah said. \u201cI had the BEST time and it was such a needed break for me to be able to get away without having to worry about the care of our son.\u201d<\/p>\n<p>Through the program, NORD provides financial assistance to eligible caregivers covering up to $500 annually so that a respite caregiver may be secured to care for a loved one. Potential applicants can reach out to NORD to determine if they meet eligibility requirements. The grant may be dispersed throughout a calendar year or be used in a single award.<\/p>\n<p>\u201cAlthough I love my son and would not trade our lives for anything, every once in a while it is important to get away and do something \u2018normal,\u2019\u201d Leah shared. \u201cThere is a critical need for respite when you care for a disabled child.\u201d<\/p>\n<p><span style=\"font-weight: 400;\">The fund continues to accept additional donations to ensure the program is sustained for years to come.<\/span> <span style=\"font-weight: 400;\">For more information and instructions on how to apply,<strong> <a href=\"https:\/\/rarediseases.org\/wp-content\/uploads\/2019\/05\/NRD-1182-RespiteCare_SS_1up_FNL_NoCrops_Fixed.pdf\" target=\"_blank\" rel=\"noopener\">click here<\/a><\/strong><\/span><span style=\"font-weight: 400;\">.<\/span><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Earlier this year, NORD launched the first-of-its-kind Rare Caregiver Respite Program, designed to enable caregivers to take a much-deserved respite. Leah Schust, caregiver for her young son and one of &hellip; <\/p>\n<p class=\"link-more\"><a href=\"https:\/\/rarediseases.org\/es\/rare-caregiver-respite-leahs-story\/\" class=\"more-link\">Continue reading<span class=\"screen-reader-text\"> &#8220;Rare Caregiver Respite: Leah&#8217;s Story&#8221;<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":12703,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"footnotes":""},"categories":[505],"tags":[2011,2014,2010,2012,2013],"class_list":["post-59031","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-patient-stories","tag-caregiver-respite","tag-financial-assistance","tag-nord-rare-caregiver-respite-program","tag-rare-disease-respite","tag-respite-care"],"acf":[],"_links":{"self":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/59031","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/comments?post=59031"}],"version-history":[{"count":0,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/59031\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media\/12703"}],"wp:attachment":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media?parent=59031"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/categories?post=59031"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/tags?post=59031"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}