{"id":59048,"date":"2019-09-16T17:54:53","date_gmt":"2019-09-16T21:54:53","guid":{"rendered":"https:\/\/rarediseases.org\/nord-expands-rare-disease-video-library\/"},"modified":"2019-09-16T17:54:53","modified_gmt":"2019-09-16T21:54:53","slug":"nord-expands-rare-disease-video-library","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/nord-expands-rare-disease-video-library\/","title":{"rendered":"NORD Expands Rare Disease Video Library"},"content":{"rendered":"<p><span style=\"font-weight: 400;\">Seven new videos have been added to the NORD Rare Disease Video Library, a unique educational resource launched earlier this summer.\u00a0 The library features videos on rare diseases and related topics for patients, caregivers, medical students and professionals.\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">The seven new videos are part of a series of short, animated, disease-specific videos for patient and professional education. This major expansion of the library was made possible by a donation from Sanofi U.S., with NORD and independent medical experts solely responsible for the content.\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">\u201cNORD has long been a leader in providing educational content for patients, caregivers, students and professionals. Our Rare Disease Database is one of the most visited features of our website. With today\u2019s awareness that video is\u00a0 a powerful teaching tool, and to accommodate different learning styles, we are happy to be able to provide these additional educational resources, created with the assistance of leading rare disease medical experts,\u201d said Sika Dunyoh, Director of Education Programs for NORD.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">The new videos cover the following rare diseases:<\/span><\/p>\n<ul>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Fabry disease<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Gaucher disease<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Metachromatic leukodystrophy<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Mucopolysaccharidosis (MPS) type I<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Niemann-Pick disease types A &amp; B<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Pompe disease<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Tay-Sachs disease<\/span><\/li>\n<\/ul>\n<p><span style=\"font-weight: 400;\">In each case, NORD worked with noted medical experts to ensure accuracy of the content. Also, NORD member organizations are referenced for additional disease-specific information on the videos.\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">NORD\u2019s Rare Disease Video Library was launched in June 2019. The section featuring disease-specific videos can be found <\/span><a href=\"https:\/\/rarediseases.org\/video-topic\/medical-education\/\"><span style=\"font-weight: 400;\">here<\/span><\/a><span style=\"font-weight: 400;\">.<\/span><span style=\"font-weight: 400;\">\u00a0\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Videos are made possible by individual donations, educational grants and sponsorship. Additional information is available <\/span><a href=\"https:\/\/rarediseases.org\/wp-content\/uploads\/2019\/06\/Rare-EDU-Sponsors.pdf\"><span style=\"font-weight: 400;\">here<\/span><\/a><span style=\"font-weight: 400;\">.<\/span><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Seven new videos have been added to the NORD Rare Disease Video Library, a unique educational resource launched earlier this summer.\u00a0 The library features videos on rare diseases and related &hellip; <\/p>\n<p class=\"link-more\"><a href=\"https:\/\/rarediseases.org\/es\/nord-expands-rare-disease-video-library\/\" class=\"more-link\">Continue reading<span class=\"screen-reader-text\"> &#8220;NORD Expands Rare Disease Video Library&#8221;<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"footnotes":""},"categories":[190,192],"tags":[],"class_list":["post-59048","post","type-post","status-publish","format-standard","hentry","category-featured-news","category-patients-members"],"acf":[],"_links":{"self":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/59048","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/comments?post=59048"}],"version-history":[{"count":0,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/59048\/revisions"}],"wp:attachment":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media?parent=59048"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/categories?post=59048"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/tags?post=59048"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}