{"id":59061,"date":"2019-10-01T12:32:29","date_gmt":"2019-10-01T16:32:29","guid":{"rendered":"https:\/\/rarediseases.org\/today-is-rarecancerday\/"},"modified":"2022-12-02T08:14:33","modified_gmt":"2022-12-02T13:14:33","slug":"today-is-rarecancerday","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/today-is-rarecancerday\/","title":{"rendered":"Today is #RareCancerDay!"},"content":{"rendered":"

The big day is here – Rare Cancer Day! Launched by the National Organization for Rare Disorders\u24c7 (NORD)\u00a0and the NORD Rare Cancer Coalition®<\/sup>, the goal of #RareCancerDay is to raise critical awareness of rare cancers and the need for greater research funding and patient support.<\/p>\n

\u201cI\u2019ve never heard of that!\u201d is often the response people living with rare cancers hear when sharing news of their diagnosis. People\u00a0living with rare cancers also deal with a lack of available information and effective treatment options, in addition to the isolation, fear, frustration and other overwhelming feelings that can accompany a more common cancer diagnosis. October 1 is a day\u00a0for raising awareness about the challenges people living with rare cancers face as well as highlighting the need for early diagnosis.<\/p>\n

Today\u00a0we are asking the world at large to join in #RareCancerDay\u00a0by using the hashtag, posting online messages of support for the community and taking part in today’s activities, which include:<\/p>\n

12:00p.m. Eastern<\/em> – Facebook Live<\/strong> with NORD Director of Membership Debbie Drell sharing facts on rare cancers gathered from Rare Cancer Coalition®<\/sup> Members. Join us:\u00a0https:\/\/bit.ly\/RCD-live<\/a><\/p>\n

1:00p.m. Eastern<\/em> –\u00a0Free NORD webinar<\/strong> \u2013 Rare Cancers: Facts, Challenges and Patient Stories<\/strong>, featuring a\u00a0panel of speakers including a top\u00a0American Cancer Society researcher, patients and advocates discussing\u00a0the state of rare cancers in America, stories of diagnosis and survival and ways to get involved in raising awareness. Register here:\u00a0https:\/\/cc.readytalk.com\/r\/ix7ujckulvic&eom<\/p>\n

All day <\/em>– download\u00a0the #RareCancerDay social media toolkit<\/a>, with suggested social posts and graphics, and share rare cancer facts with\u00a0your followers in order to raise awareness<\/strong>. Also, follow NORD on social media and share\/retweet\/like our posts on the day.<\/p>\n

All day<\/em> – visit\u00a0the NORD website<\/a> to read the “Voices of Rare Cancer” stories <\/strong>of brave individuals like Nicole, Graeleigh, Paul, Mackenzie and many others.<\/p>\n

\"\"<\/a> \"\"<\/a> \"\"<\/a>\"\"<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

The big day is here – Rare Cancer Day! Launched by the National Organization for Rare Disorders\u24c7 (NORD)\u00a0and the NORD Rare Cancer Coalition®, the goal of #RareCancerDay is to raise … <\/p>\n

Continue reading “Today is #RareCancerDay!”<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":12761,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"footnotes":""},"categories":[232,503,190,505],"tags":[2050,2083,798,2046,2084],"class_list":["post-59061","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-advocacy","category-events","category-featured-news","category-patient-stories","tag-rarecancerday","tag-american-cancer-society","tag-rare-cancer","tag-rare-cancer-coalition","tag-voices-of-rare-cancer"],"acf":[],"_links":{"self":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/59061","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/comments?post=59061"}],"version-history":[{"count":0,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/59061\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media\/12761"}],"wp:attachment":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media?parent=59061"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/categories?post=59061"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/tags?post=59061"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}