{"id":59074,"date":"2019-11-14T11:12:27","date_gmt":"2019-11-14T16:12:27","guid":{"rendered":"https:\/\/rarediseases.org\/nord-survey-to-better-understand-rare-disease-diagnosis-care-and-treatment-in-the-us-take-part-in-our-30-year-follow-up\/"},"modified":"2019-11-14T11:12:27","modified_gmt":"2019-11-14T16:12:27","slug":"nord-survey-to-better-understand-rare-disease-diagnosis-care-and-treatment-in-the-us-take-part-in-our-30-year-follow-up","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/nord-survey-to-better-understand-rare-disease-diagnosis-care-and-treatment-in-the-us-take-part-in-our-30-year-follow-up\/","title":{"rendered":"NORD Survey to Better Understand Rare Disease Diagnosis, Care and Treatment in the US: Take Part in Our 30 Year Follow-up"},"content":{"rendered":"

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At NORD, we know that patient-powered initiatives change the world. Our priority is advancing rare disease research and innovation by working together to overcome critical challenges.\u00a0<\/span><\/p>\n

In 1989 and again in 2003, NORD conducted a survey to better understand the barriers and facilitators of rare disease diagnosis, care and treatment in the United States. Today, NORD is conducting a 30 year follow-up to compare the information over time.<\/span><\/p>\n

Please click<\/span> here<\/span><\/a> to participate and share your journey. We appreciate your time!\u00a0<\/span><\/p>\n

The survey should take about\u00a0 5-10 minutes to complete. If you have any questions please reach out to\u00a0 <\/span><\/i>research@rarediseases.org<\/span><\/i>.<\/span><\/i><\/p>\n