{"id":59136,"date":"2020-04-21T19:03:42","date_gmt":"2020-04-21T23:03:42","guid":{"rendered":"https:\/\/rarediseases.org\/nords-director-of-research-programs-publishes-article-on-rare-disease-research-in-the-2020-rare-neurological-disease-special-report\/"},"modified":"2020-04-21T19:03:42","modified_gmt":"2020-04-21T23:03:42","slug":"nords-director-of-research-programs-publishes-article-on-rare-disease-research-in-the-2020-rare-neurological-disease-special-report","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/nords-director-of-research-programs-publishes-article-on-rare-disease-research-in-the-2020-rare-neurological-disease-special-report\/","title":{"rendered":"NORD&#8217;s Director of Research Programs Publishes Article on Rare Disease Research in the 2020 Rare Neurological Disease Special Report"},"content":{"rendered":"<p><span style=\"font-weight: 400;\">The National Organization for Rare Disorders (NORD\u00ae) is excited to spotlight an article written by NORD\u2019s Director of Research, Vanessa Boulanger, MSc, published in the 2020 Rare Neurological Disease Special Report. The feature, <a href=\"https:\/\/www.neurologyreviews-digital.com\/neurologyreviews\/nord_march_2020\/MobilePagedReplica.action?pm=2&amp;folio=122#pg132\" rel=\"nofollow noopener\" target=\"_blank\">\u201cNow Is The Time For Research On Rare Diseases,\u201d<\/a> details the importance of natural history studies, the role of patients and caregivers as research partners, and the power of collaboration. Generating evidence and actionable insight to benefit the rare disease community is central to NORD\u2019s approach to research. Our team\u2019s involvement in collaborative projects that span the research continuum, including how studies are designed, data is collected, information disseminated, and datasets leveraged and combined to support research and scientific advancement, in addition to our <\/span><a href=\"https:\/\/rarediseases.org\/iamrare-registry-program\/\"><span style=\"font-weight: 400;\">NORD-driven research initiatives<\/span><\/a><span style=\"font-weight: 400;\">, demonstrates our strong commitment to driving forward progress for all rare disease communities.\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Please contact the team at\u00a0<\/span><a href=\"mailto:research@rarediseases.org\"><span style=\"font-weight: 400;\">research@rarediseases.org<\/span><\/a><span style=\"font-weight: 400;\">\u00a0to learn more about NORD\u2019s research initiatives.\u00a0<\/span><\/p>\n","protected":false},"excerpt":{"rendered":"<p>The National Organization for Rare Disorders (NORD\u00ae) is excited to spotlight an article written by NORD\u2019s Director of Research, Vanessa Boulanger, MSc, published in the 2020 Rare Neurological Disease Special &hellip; <\/p>\n<p class=\"link-more\"><a href=\"https:\/\/rarediseases.org\/es\/nords-director-of-research-programs-publishes-article-on-rare-disease-research-in-the-2020-rare-neurological-disease-special-report\/\" class=\"more-link\">Continue reading<span class=\"screen-reader-text\"> &#8220;NORD&#8217;s Director of Research Programs Publishes Article on Rare Disease Research in the 2020 Rare Neurological Disease Special Report&#8221;<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"footnotes":""},"categories":[190,191,193],"tags":[1512,266,966,1386],"class_list":["post-59136","post","type-post","status-publish","format-standard","hentry","category-featured-news","category-medical","category-research","tag-frontline-medical-communications","tag-rare-disease-research","tag-rare-neurological-disease-special-report","tag-vanessa-boulanger"],"acf":[],"_links":{"self":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/59136","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/comments?post=59136"}],"version-history":[{"count":0,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/59136\/revisions"}],"wp:attachment":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media?parent=59136"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/categories?post=59136"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/tags?post=59136"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}