{"id":59152,"date":"2020-06-02T13:20:34","date_gmt":"2020-06-02T17:20:34","guid":{"rendered":"https:\/\/rarediseases.org\/new-video-from-nord-and-c-path-addresses-the-question-what-is-a-registry\/"},"modified":"2020-06-02T13:20:34","modified_gmt":"2020-06-02T17:20:34","slug":"new-video-from-nord-and-c-path-addresses-the-question-what-is-a-registry","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/new-video-from-nord-and-c-path-addresses-the-question-what-is-a-registry\/","title":{"rendered":"New video from NORD and C-Path addresses the question: &#8220;What is a Registry?&#8221;"},"content":{"rendered":"<div id=\"meta\" class=\"style-scope ytd-watch-flexy\">\n<div id=\"meta-contents\" class=\"style-scope ytd-watch-flexy\">\n<div id=\"container\" class=\"style-scope ytd-video-secondary-info-renderer\">\n<div id=\"content\" class=\"style-scope ytd-expander\">\n<div id=\"description\" class=\"style-scope ytd-video-secondary-info-renderer\"><span class=\"style-scope yt-formatted-string\" dir=\"auto\">What is a registry and why are they so important to the rare disease community? Together, NORD and the Critical Path Institute (C-Path) created this video to explain the value in registries and why patients and patient organizations should participate in them. Registry data can now be shared through their collaborative platform, the Rare Disease Cures Accelerator-Data and Analytics Platform (RDCA-DAP), to help speed the development of new treatments for rare diseases. Learn more: <\/span><a class=\"yt-simple-endpoint style-scope yt-formatted-string\" dir=\"auto\" spellcheck=\"false\" href=\"https:\/\/www.youtube.com\/redirect?redir_token=pRJvQ3vpkCox8OSXzkea9UH9dE58MTU5MTE4OTk5MUAxNTkxMTAzNTkx&amp;q=https%3A%2F%2Fbit.ly%2FRDCA-DAP&amp;event=video_description&amp;v=XMMhqSLkKwg\" target=\"_blank\" rel=\"nofollow noopener noreferrer\">https:\/\/bit.ly\/RDCA-DAP<\/a> <a class=\"yt-simple-endpoint style-scope yt-formatted-string\" dir=\"auto\" spellcheck=\"false\" href=\"https:\/\/www.youtube.com\/results?search_query=%23RDCADAP\" rel=\"nofollow noopener\" target=\"_blank\">#RDCADAP<\/a><\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<p>&nbsp;<\/p>\n<p><iframe loading=\"lazy\" src=\"https:\/\/player.vimeo.com\/video\/423170151?h=2a506d5c31&amp;dnt=1&amp;app_id=122963\" width=\"1200\" height=\"675\" frameborder=\"0\" allow=\"autoplay; fullscreen; picture-in-picture\" allowfullscreen><\/iframe><\/p>\n","protected":false},"excerpt":{"rendered":"<p>What is a registry and why are they so important to the rare disease community? Together, NORD and the Critical Path Institute (C-Path) created this video to explain the value &hellip; <\/p>\n<p class=\"link-more\"><a href=\"https:\/\/rarediseases.org\/es\/new-video-from-nord-and-c-path-addresses-the-question-what-is-a-registry\/\" class=\"more-link\">Continue reading<span class=\"screen-reader-text\"> &#8220;New video from NORD and C-Path addresses the question: &#8220;What is a Registry?&#8221;&#8221;<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"footnotes":""},"categories":[190,192,193],"tags":[2037,2366,2367,1754,2034,228,2036,1428],"class_list":["post-59152","post","type-post","status-publish","format-standard","hentry","category-featured-news","category-patients-members","category-research","tag-c-path","tag-critical-path-institute","tag-patient-organizations","tag-patient-registry","tag-rare-disease-cures-accelerator-data-and-analytics-platform","tag-rare-diseases","tag-rdca-dap","tag-registry"],"acf":[],"_links":{"self":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/59152","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/comments?post=59152"}],"version-history":[{"count":0,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/59152\/revisions"}],"wp:attachment":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media?parent=59152"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/categories?post=59152"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/tags?post=59152"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}