{"id":59168,"date":"2020-07-23T14:02:45","date_gmt":"2020-07-23T18:02:45","guid":{"rendered":"https:\/\/rarediseases.org\/nord-awards-covid-19-rapid-response-seed-grants-to-rare-disease-patient-organizations-impacted-by-the-pandemic\/"},"modified":"2020-07-23T14:02:45","modified_gmt":"2020-07-23T18:02:45","slug":"nord-awards-covid-19-rapid-response-seed-grants-to-rare-disease-patient-organizations-impacted-by-the-pandemic","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/nord-awards-covid-19-rapid-response-seed-grants-to-rare-disease-patient-organizations-impacted-by-the-pandemic\/","title":{"rendered":"NORD Awards COVID-19 Rapid Response Seed Grants to Rare Disease Patient Organizations Impacted by the Pandemic"},"content":{"rendered":"

Washington, DC,\u00a0<\/span><\/b>July 2<\/span><\/b>3<\/span><\/b>, 2020\u2014<\/span><\/b>In response to the\u00a0<\/span>unprecedented<\/span>\u00a0<\/span>challenges rare disease nonprofit organizations\u00a0<\/span>are currently facing<\/span>, t<\/span>he National Organization for Rare Disorders (NORD\u00ae) today\u00a0<\/span>announced<\/span>\u00a0<\/span>nineteen\u00a0<\/span>seed grant\u00a0<\/span>recipients of its COVID-19 Rapid Response\u00a0<\/span>Leadership Series program<\/span>.<\/span>\u00a0<\/span>The awards\u00a0<\/span>will\u00a0<\/span>assist<\/span>\u00a0<\/span>patient advocacy<\/span>\u00a0groups\u00a0<\/span>to\u00a0<\/span>access<\/span>\u00a0capacity-building<\/span>\u00a0<\/span>tools and training ne<\/span>eded<\/span>\u00a0<\/span>in<\/span>\u00a0the new virtual environment\u00a0<\/span>made necessary<\/span>\u00a0by\u00a0<\/span>COVID-19<\/span>.<\/span>\u00a0<\/span><\/p>\n

O<\/span>nce<\/span>\u00a0large<\/span>\u00a0in-person meetings<\/span>,<\/span>\u00a0including vital fundraising events and conferences<\/span>,<\/span>\u00a0<\/span>were\u00a0<\/span>canceled<\/span>\u00a0many organizations providing critical services to Americans living with a rare disease were faced with a funding crisis.<\/span>\u00a0<\/span>NORD<\/span>\u00a0developed a<\/span>\u00a0<\/span>COVID-19 Rapid Response\u00a0<\/span>Leadership Series p<\/span>rogram\u00a0<\/span>to\u00a0<\/span>help<\/span>\u00a0rare disease nonprofits<\/span>\u00a0<\/span>face<\/span>\u00a0<\/span>such<\/span>\u00a0challenges<\/span>\u00a0through free educational webinars and capacity-building seed grants.<\/span>\u00a0<\/span>\u00a0<\/span><\/p>\n

The following recipients have been awarded a COVID-19 Rapid Response Seed Grant.<\/span>\u00a0<\/span><\/p>\n