{"id":59181,"date":"2020-09-10T14:29:00","date_gmt":"2020-09-10T18:29:00","guid":{"rendered":"https:\/\/rarediseases.org\/2020-nord-summit-to-feature-leading-experts-in-public-policy-patient-advocacy-rare-disease-research-and-regulatory-science\/"},"modified":"2020-09-10T14:29:00","modified_gmt":"2020-09-10T18:29:00","slug":"2020-nord-summit-to-feature-leading-experts-in-public-policy-patient-advocacy-rare-disease-research-and-regulatory-science","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/2020-nord-summit-to-feature-leading-experts-in-public-policy-patient-advocacy-rare-disease-research-and-regulatory-science\/","title":{"rendered":"2020 NORD Summit to Feature Leading Experts in Public Policy, Patient Advocacy, Rare Disease Research and Regulatory Science"},"content":{"rendered":"

Washington, DC, September 10, 2020<\/span><\/b>–At a time when it<\/span>\u00a0is<\/span>\u00a0vitally important for the rare disease community to come together, the National Organization for Rare Disorders (NORD<\/span>\u00ae<\/span>) has announced a program of broad-ranging topics with speakers of unparalleled expertise for the\u00a0<\/span>2020 NORD Rare Diseases and Orphan Products Breakthrough Summit<\/span><\/a>, t<\/span>aking<\/span>\u00a0place virtually October 8-9.<\/span>\u00a0<\/span><\/p>\n

\u201cWith\u00a0<\/span>our<\/span>\u00a0community deeply affected by COVID-19, important policy issues at a critical point<\/span>,<\/span>\u00a0and scientific innovation advancing more rapidly than at any time in history,\u00a0<\/span>it is<\/span>\u00a0<\/span>essential for the community to come together<\/span>\u00a0virtually<\/span>\u00a0to share perspectives and address<\/span>\u00a0time-sensitive topics,\u201d said NORD President and CEO Peter L. Saltonstall. \u201cAt the\u00a0<\/span>NORD\u00a0<\/span>Summit, we will tackle the issues that matter most to the community at this unique moment and\u00a0<\/span>hear directly from leading experts\u00a0<\/span>on the front lines\u00a0<\/span>of<\/span>\u00a0<\/span>public policy<\/span>, medical research, patient advocacy and regulatory science.\u201d<\/span>\u00a0<\/span><\/p>\n

T<\/span>he 2020 NORD Summit\u00a0<\/span>will\u00a0<\/span>feature<\/span>\u00a0a<\/span>\u00a0dynamic<\/span>\u00a0roster of advocates, thought leaders and subject matter experts.<\/span>\u00a0<\/span>S<\/span>essions<\/span>\u00a0include<\/span>:<\/span>\u00a0<\/span><\/p>\n