{"id":59189,"date":"2020-09-23T12:50:55","date_gmt":"2020-09-23T16:50:55","guid":{"rendered":"https:\/\/rarediseases.org\/nord-and-c-path-release-video-on-rare-disease-challenges-in-each-step-of-the-drug-development-process\/"},"modified":"2020-09-23T12:50:55","modified_gmt":"2020-09-23T16:50:55","slug":"nord-and-c-path-release-video-on-rare-disease-challenges-in-each-step-of-the-drug-development-process","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/nord-and-c-path-release-video-on-rare-disease-challenges-in-each-step-of-the-drug-development-process\/","title":{"rendered":"NORD and C-Path Release Video on Rare Disease Challenges in Each Step of the Drug Development Process"},"content":{"rendered":"<p><span class=\"TextRun SCXW48054660 BCX0\" lang=\"EN-US\" xml_lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW48054660 BCX0\">There are over 7,000 rare diseases, approximately 90% do not have FDA-approved <\/span><\/span><span class=\"TextRun SCXW48054660 BCX0\" lang=\"EN-US\" xml_lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW48054660 BCX0\">treatments<\/span><\/span><span class=\"TextRun SCXW48054660 BCX0\" lang=\"EN-US\" xml_lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW48054660 BCX0\">, and\u00a0<\/span><\/span><span class=\"TextRun SCXW48054660 BCX0\" lang=\"EN-US\" xml_lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW48054660 BCX0\">the process of\u00a0<\/span><\/span><span class=\"TextRun SCXW48054660 BCX0\" lang=\"EN-US\" xml_lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW48054660 BCX0\">d<\/span><\/span><span class=\"TextRun SCXW48054660 BCX0\" lang=\"EN-US\" xml_lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW48054660 BCX0\">eveloping<\/span><\/span><span class=\"TextRun SCXW48054660 BCX0\" lang=\"EN-US\" xml_lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW48054660 BCX0\">\u00a0<\/span><\/span><span class=\"TextRun SCXW48054660 BCX0\" lang=\"EN-US\" xml_lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW48054660 BCX0\">therapies<\/span><\/span><span class=\"TextRun SCXW48054660 BCX0\" lang=\"EN-US\" xml_lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW48054660 BCX0\">\u00a0for rare diseases involves special challenges and considerations. NORD and<\/span><\/span><span class=\"TextRun SCXW48054660 BCX0\" lang=\"EN-US\" xml_lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW48054660 BCX0\">\u00a0the Critical Path Institute<\/span><\/span><span class=\"TextRun SCXW48054660 BCX0\" lang=\"EN-US\" xml_lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW48054660 BCX0\">\u00a0(C-Path)<\/span><\/span><span class=\"TextRun SCXW48054660 BCX0\" lang=\"EN-US\" xml_lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW48054660 BCX0\">\u00a0are working together on a new initiative, the Rare Disease Cures Accelerator-Data and Analytics Platform (RDCA-DAP)<\/span><\/span><span class=\"TextRun SCXW48054660 BCX0\" lang=\"EN-US\" xml_lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW48054660 BCX0\">,<\/span><\/span><span class=\"TextRun SCXW48054660 BCX0\" lang=\"EN-US\" xml_lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW48054660 BCX0\">\u00a0<\/span><\/span><span class=\"TextRun SCXW48054660 BCX0\" lang=\"EN-US\" xml_lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW48054660 BCX0\">bringing together<\/span><\/span><span class=\"TextRun SCXW48054660 BCX0\" lang=\"EN-US\" xml_lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW48054660 BCX0\">\u00a0data from different sources and\u00a0<\/span><\/span><span class=\"TextRun SCXW48054660 BCX0\" lang=\"EN-US\" xml_lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW48054660 BCX0\">providing tools for\u00a0<\/span><\/span><span class=\"TextRun SCXW48054660 BCX0\" lang=\"EN-US\" xml_lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW48054660 BCX0\">streamlining<\/span><\/span><span class=\"TextRun SCXW48054660 BCX0\" lang=\"EN-US\" xml_lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW48054660 BCX0\">\u00a0the steps of research\u00a0<\/span><\/span><span class=\"TextRun SCXW48054660 BCX0\" lang=\"EN-US\" xml_lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW48054660 BCX0\">and development<\/span><\/span><span class=\"TextRun SCXW48054660 BCX0\" lang=\"EN-US\" xml_lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW48054660 BCX0\">\u00a0to help researchers and drug developers overcome these difficulties<\/span><\/span><span class=\"TextRun SCXW48054660 BCX0\" lang=\"EN-US\" xml_lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW48054660 BCX0\">. Watch video #2 in NORD and C-Path&#8217;s three-part video series,\u00a0<\/span><\/span><span class=\"TextRun SCXW48054660 BCX0\" lang=\"EN-US\" xml_lang=\"EN-US\" data-contrast=\"none\"><span class=\"NormalTextRun SCXW48054660 BCX0\">\u201cAccelerating Rare Disease Drug Development,\u201d which\u00a0<\/span><\/span><span class=\"TextRun SCXW48054660 BCX0\" lang=\"EN-US\" xml_lang=\"EN-US\" data-contrast=\"none\"><span class=\"NormalTextRun SCXW48054660 BCX0\">examines<\/span><\/span><span class=\"TextRun SCXW48054660 BCX0\" lang=\"EN-US\" xml_lang=\"EN-US\" data-contrast=\"none\"><span class=\"NormalTextRun SCXW48054660 BCX0\">\u00a0the\u00a0<\/span><\/span><span class=\"TextRun SCXW48054660 BCX0\" lang=\"EN-US\" xml_lang=\"EN-US\" data-contrast=\"none\"><span class=\"NormalTextRun SCXW48054660 BCX0\">challenges<\/span><\/span><span class=\"TextRun SCXW48054660 BCX0\" lang=\"EN-US\" xml_lang=\"EN-US\" data-contrast=\"none\"><span class=\"NormalTextRun SCXW48054660 BCX0\">\u00a0of developing therapies for rare diseases<\/span><\/span><span class=\"TextRun SCXW48054660 BCX0\" lang=\"EN-US\" xml_lang=\"EN-US\" data-contrast=\"none\"><span class=\"NormalTextRun SCXW48054660 BCX0\">\u00a0in each step of the drug development process<\/span><\/span><span class=\"TextRun SCXW48054660 BCX0\" lang=\"EN-US\" xml_lang=\"EN-US\" data-contrast=\"none\"><span class=\"NormalTextRun SCXW48054660 BCX0\">. You can watch the video or learn\u00a0<\/span><\/span><span class=\"TextRun SCXW48054660 BCX0\" lang=\"EN-US\" xml_lang=\"EN-US\" data-contrast=\"none\"><span class=\"NormalTextRun SCXW48054660 BCX0\">more about the RDCA-DAP here:\u00a0<\/span><\/span><a class=\"Hyperlink SCXW48054660 BCX0\" href=\"https:\/\/rarediseases.org\/rdca-dap\/\" target=\"_blank\" rel=\"noreferrer noopener\"><span class=\"TextRun Underlined SCXW48054660 BCX0\" lang=\"EN-US\" xml_lang=\"EN-US\" data-contrast=\"none\"><span class=\"NormalTextRun SCXW48054660 BCX0\" data-ccp-charstyle=\"Hyperlink\">https:\/\/rarediseases.org\/rdca-dap\/<\/span><\/span><\/a><span class=\"EOP SCXW48054660 BCX0\" data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335551550&quot;:1,&quot;335551620&quot;:1,&quot;335559739&quot;:160,&quot;335559740&quot;:259}\">\u00a0<\/span><\/p>\n<p><iframe loading=\"lazy\" src=\"https:\/\/player.vimeo.com\/video\/464252418?color=fc4c02&amp;title=0&amp;byline=0&amp;portrait=0\" width=\"640\" height=\"360\" frameborder=\"0\" allowfullscreen=\"allowfullscreen\"><\/iframe><\/p>\n","protected":false},"excerpt":{"rendered":"<p>There are over 7,000 rare diseases, approximately 90% do not have FDA-approved treatments, and\u00a0the process of\u00a0developing\u00a0therapies\u00a0for rare diseases involves special challenges and considerations. NORD and\u00a0the Critical Path Institute\u00a0(C-Path)\u00a0are working together &hellip; <\/p>\n<p class=\"link-more\"><a href=\"https:\/\/rarediseases.org\/es\/nord-and-c-path-release-video-on-rare-disease-challenges-in-each-step-of-the-drug-development-process\/\" class=\"more-link\">Continue reading<span class=\"screen-reader-text\"> &#8220;NORD and C-Path Release Video on Rare Disease Challenges in Each Step of the Drug Development Process&#8221;<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"footnotes":""},"categories":[190,192,2427,193],"tags":[2037,2366,1278,225,2460,2036],"class_list":["post-59189","post","type-post","status-publish","format-standard","hentry","category-featured-news","category-patients-members","category-rdca-dap","category-research","tag-c-path","tag-critical-path-institute","tag-national-organization-for-rare-disorders","tag-nord","tag-rare-disease-drug-development","tag-rdca-dap"],"acf":[],"_links":{"self":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/59189","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/comments?post=59189"}],"version-history":[{"count":0,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/59189\/revisions"}],"wp:attachment":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media?parent=59189"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/categories?post=59189"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/tags?post=59189"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}