{"id":59225,"date":"2020-12-17T18:09:27","date_gmt":"2020-12-17T23:09:27","guid":{"rendered":"https:\/\/rarediseases.org\/stat-features-nord-in-article-on-the-continued-threat-ppe-shortages-pose-to-some-rare-disease-patients\/"},"modified":"2020-12-17T18:09:27","modified_gmt":"2020-12-17T23:09:27","slug":"stat-features-nord-in-article-on-the-continued-threat-ppe-shortages-pose-to-some-rare-disease-patients","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/stat-features-nord-in-article-on-the-continued-threat-ppe-shortages-pose-to-some-rare-disease-patients\/","title":{"rendered":"STAT Features NORD in Article on the Continued Threat PPE Shortages Pose to Some Rare Disease Patients"},"content":{"rendered":"<p>In a 12.16.2020 article from STAT on how shortages of protective gear pose a continued threat to some rare disease patients, NORD&#8217;s <a href=\"https:\/\/rarediseases.org\/wp-content\/uploads\/2020\/11\/NRD-2061-RareInsights-CV19-Report-2_FNL.pdf\">COVID-19 Community Survey Report<\/a> is highlighted and NE Rare Action Network&#8217;s Aimee Guarnieri and NY Rare Action Network&#8217;s Mary Wooten are interviewed. Also interviewed in the piece is Lauren Ruotolo, president of the <a href=\"https:\/\/fdmasalliance.org\/\" target=\"_blank\" rel=\"noopener noreferrer nofollow\">FD\/MAS Alliance<\/a>, a NORD member organization.<\/p>\n<p>Read the article in its entirety: <a href=\"https:\/\/www.statnews.com\/2020\/12\/16\/covid19-ppe-shortages-rare-disease\/\" rel=\"nofollow noopener\" target=\"_blank\">https:\/\/www.statnews.com\/2020\/12\/16\/covid19-ppe-shortages-rare-disease\/<\/a><\/p>\n<p>#NORDintheNews<\/p>\n","protected":false},"excerpt":{"rendered":"<p>In a 12.16.2020 article from STAT on how shortages of protective gear pose a continued threat to some rare disease patients, NORD&#8217;s COVID-19 Community Survey Report is highlighted and NE &hellip; <\/p>\n<p class=\"link-more\"><a href=\"https:\/\/rarediseases.org\/es\/stat-features-nord-in-article-on-the-continued-threat-ppe-shortages-pose-to-some-rare-disease-patients\/\" class=\"more-link\">Continue reading<span class=\"screen-reader-text\"> &#8220;STAT Features NORD in Article on the Continued Threat PPE Shortages Pose to Some Rare Disease Patients&#8221;<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":13055,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"footnotes":""},"categories":[2394,232,190,192],"tags":[2597,2600,2599,2598,2596,2601,526],"class_list":["post-59225","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-nordinthenews","category-advocacy","category-featured-news","category-patients-members","tag-aimee-guarnieri","tag-fd-mas-alliance","tag-lauren-ruotolo","tag-mary-wooten","tag-nord-covid-19-community-survey-report","tag-ppe","tag-rare-action-network"],"acf":[],"_links":{"self":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/59225","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/comments?post=59225"}],"version-history":[{"count":0,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/59225\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media\/13055"}],"wp:attachment":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media?parent=59225"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/categories?post=59225"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/tags?post=59225"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}