{"id":59237,"date":"2021-01-28T17:13:05","date_gmt":"2021-01-28T22:13:05","guid":{"rendered":"https:\/\/rarediseases.org\/how-will-you-show-your-stripes-in-30-days-join-nord-in-spreading-awareness-for-rare-disease-day-february-28\/"},"modified":"2021-01-28T17:13:05","modified_gmt":"2021-01-28T22:13:05","slug":"how-will-you-show-your-stripes-in-30-days-join-nord-in-spreading-awareness-for-rare-disease-day-february-28","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/how-will-you-show-your-stripes-in-30-days-join-nord-in-spreading-awareness-for-rare-disease-day-february-28\/","title":{"rendered":"How Will You Show Your Stripes in 30 Days? Join NORD in Spreading Awareness for Rare Disease Day\u00ae, February 28"},"content":{"rendered":"

Washington, DC, January\u00a0<\/span><\/b>28<\/span><\/b>, 202<\/span><\/b>1<\/span><\/b>\u2014<\/span>\u00a0<\/span>Even with the world acutely aware of public health matters in light of the COVID-19 pandemic, there are millions in the United States and around the globe living with<\/span>\u00a0<\/span>ra<\/span>re\u00a0<\/span>diseases<\/span>\u00a0and\u00a0<\/span>accompanying<\/span>\u00a0life-altering issues<\/span>\u00a0<\/span>that are\u00a0<\/span>largely unknown to the\u00a0<\/span>general\u00a0<\/span>public<\/span>.<\/span>\u00a0<\/span>R<\/span>are Disease Day<\/span>\u00a02021<\/span>\u00a0is coming up in thirty days<\/span>,\u00a0<\/span>and\u00a0<\/span>t<\/span>he National Organization for Rare Disorders (N<\/span>ORD<\/span>\u00ae<\/span>)<\/span>\u00a0<\/span>is inviting\u00a0<\/span>all to join<\/span>\u00a0<\/span>in\u00a0<\/span>shining a light on the\u00a0<\/span>challenges<\/span>\u00a0faced by<\/span>\u00a0<\/span>rare\u00a0<\/span>patients and familie<\/span>s<\/span>, as well as those\u00a0<\/span>still\u00a0<\/span>without a diagnosis<\/span>, and the need for research into treatments and cures<\/span>.<\/span>\u00a0<\/span><\/p>\n

Launched by EURORDIS-Rare Diseases Europe in 2008, Rare Disease Day is the\u00a0<\/span>patient-led\u00a0<\/span>international\u00a0<\/span>awareness campaign that brings\u00a0<\/span>people\u00a0<\/span>together\u00a0<\/span>in solidarity with the 300 million p<\/span>atients<\/span>\u00a0<\/span>impacted by<\/span>\u00a0rare disease<\/span>s<\/span>\u00a0worldwide.<\/span>\u00a0In 2009,\u00a0<\/span>Rare Disease Day became a\u00a0<\/span>global event when\u00a0<\/span>NORD\u00a0<\/span>became<\/span>\u00a0the official sponsor<\/span>\u00a0<\/span>of\u00a0<\/span>the celebrat<\/span>ion in the United States.<\/span>\u00a0<\/span><\/p>\n

This year<\/span>, NORD is asking individuals, organizations and<\/span>\u00a0companie<\/span>s in the US to<\/span>\u00a0help\u00a0<\/span>highlight<\/span>\u00a0<\/span>rare disease issues<\/span>\u00a0and the need for\u00a0<\/span>continued\u00a0<\/span>progress in research and drug development<\/span>.<\/span>\u00a0<\/span>Taking action\u00a0<\/span>and \u201cshowing your stripes\u201d\u00a0<\/span>to spread awareness<\/span>\u00a0<\/span>can\u00a0<\/span>be done<\/span>\u00a0in a variety of\u00a0<\/span>ways<\/span>, including<\/span>\u00a0by<\/span>:<\/span>\u00a0<\/span>\u00a0<\/span><\/p>\n