{"id":59247,"date":"2021-02-19T18:49:36","date_gmt":"2021-02-19T23:49:36","guid":{"rendered":"https:\/\/rarediseases.org\/nord-offers-emergency-relief-to-rare-disease-patients-and-families-impacted-by-natural-disasters\/"},"modified":"2021-02-19T18:49:36","modified_gmt":"2021-02-19T23:49:36","slug":"nord-offers-emergency-relief-to-rare-disease-patients-and-families-impacted-by-natural-disasters","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/nord-offers-emergency-relief-to-rare-disease-patients-and-families-impacted-by-natural-disasters\/","title":{"rendered":"NORD Offers Emergency Relief to Rare Disease Patients and Families Impacted by Natural Disasters"},"content":{"rendered":"

Sometimes a helping hand is most needed when an unexpected emergency arises.\u00a0<\/span>NORD is committed to support<\/span>ing<\/span>\u00a0rare disease patients and families<\/span>\u00a0and<\/span>\u00a0offers<\/span>\u00a0<\/span>several<\/span>\u00a0<\/span>programs to assist\u00a0<\/span>them in<\/span>\u00a0<\/span>times of crisis<\/span>.<\/span>\u00a0<\/span><\/p>\n

NORD\u2019s\u00a0<\/span>Hurricane\u00a0<\/span><\/b>and<\/span><\/b>\u00a0Natural Disaster Emergency Relief Fund\u00a0<\/span><\/b>provides<\/span>\u00a0<\/span>financial assistance to those\u00a0<\/span>who are\u00a0<\/span>diagnosed with a rare disease\u00a0<\/span>and\u00a0<\/span>are\u00a0<\/span>impacted by<\/span>\u00a0natural disasters<\/span>\u2014including the severe weather and snowstorms that have impacted parts of the US most recently<\/span>. This program provide<\/span>s<\/span>\u00a0limited assistance to eligible individuals on a first-come, first-served basis as program funding allows.\u00a0<\/span>Covered expenses may include<\/span>\u00a0u<\/span>nexpected utility costs<\/span>\u00a0(<\/span>such as those caused by severe\u00a0<\/span>weather<\/span>), p<\/span>hysician<\/span>–<\/span>prescribed medical devices and\/or emergency repairs on medical devices (scooters, batteries, lifts for vehicles for wheelchairs or scooters, etc.)<\/span>, emergency\u00a0<\/span>automotive<\/span>\u00a0repairs, and temporary emergency lodging.<\/span>\u202f\u202f\u202f\u202f\u202f\u202f \u00a0<\/span>\u00a0<\/span><\/p>\n

Program Contact Information:<\/span><\/b>\u00a0<\/span><\/p>\n

Email:\u00a0<\/span>hurricane@rarediseases.org<\/span><\/a>\u00a0<\/span><\/p>\n

Phone<\/span>: 877.291.8082<\/span>\u00a0<\/span><\/p>\n

Fax: 203.486.8941<\/span>\u00a0<\/span><\/p>\n

\u00a0<\/span><\/p>\n

NORD also offers\u00a0<\/span>disease-specific\u00a0<\/span><\/b>Emergency Relief Programs\u00a0<\/span><\/b>for eligible individuals<\/span>, providing support with unforeseen costs or expenses related to emergency situations or emergent need that cannot be afforded without limited, short-term assistance.<\/span>\u00a0<\/span>C<\/span>overed expenses may include\u00a0<\/span>utility costs,\u00a0<\/span>rent or mortgage payment\/s,\u00a0<\/span>home maintenance\/repair,\u00a0<\/span>appliance repair\/replacement,\u00a0<\/span>emergency\u00a0<\/span>auto<\/span>motive<\/span>\u00a0repair<\/span>s<\/span>,\u00a0<\/span>cell phone expenses, and temporary emergency lodging<\/span>.\u00a0<\/span>Support is available for eligible patients with a confirmed\u00a0<\/span>diagnosis in one of the following disease states:<\/span>\u00a0<\/span><\/p>\n