For several years, the National Organization for Rare Disorders (NORD) has prioritized gene therapy education to advance knowledge and promote safe and effective clinical applications to reduce suffering from rare conditions. With this goal in mind, NORD is dedicated to producing a variety of educational resources for patients, caregivers, health care providers, and the public.<\/p>\n
One of the newest resources that is now available is an episode<\/a> of NORDpodTM<\/sup> featuring Dr. Rachel Bailey, an authority on developing gene therapies to treat neurodegenerative disorders. In the podcast that was released on March 31, Dr. Bailey and host Matthew Zachary set out to de-jargon gene therapy as they discuss recent advances and the hope this medical technique can bring to the rare disease community.<\/p>\n NORD also continues to work with its more than 330 patient organization members to recruit advocates to participate in the American Society for Gene and Cell Therapy (ASGCT)\u2019s May 2021 workshop, \u201cPatient Advocates\u2019 Role in Advancing Gene Therapy.\u201d By connecting patient advocacy organizations with researchers and scientists, we can enhance and accelerate the efforts underway to develop new courses of treatment. Information about the workshop can be found on ASGCT\u2019s website<\/a>.<\/p>\n Coming soon, NORD and our partners, PlatformQ Health and the ASGCT will be hosting a four-part continuing medical education (CME) series on gene therapy. To get notified about the dates for this cost-free learning module for clinicians, subscribe<\/a> to NORD\u2019s CME email list.<\/p>\n While we will continue to expand our library, please take advantage of our other existing resources linked below.<\/p>\n For several years, the National Organization for Rare Disorders (NORD) has prioritized gene therapy education to advance knowledge and promote safe and effective clinical applications to reduce suffering from rare … <\/p>\n\n