{"id":59279,"date":"2021-06-11T14:15:54","date_gmt":"2021-06-11T18:15:54","guid":{"rendered":"https:\/\/rarediseases.org\/ray-stevens-rare-disease-reflections-from-22000-feet\/"},"modified":"2021-06-11T14:15:54","modified_gmt":"2021-06-11T18:15:54","slug":"ray-stevens-rare-disease-reflections-from-22000-feet","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/ray-stevens-rare-disease-reflections-from-22000-feet\/","title":{"rendered":"Ray Stevens\u2019 Rare Disease Reflections from 22,000 Feet"},"content":{"rendered":"<p><span data-contrast=\"none\">Ray Stevens, rare disease\u00a0researcher,\u00a0advocate,\u00a0and adventure seeker, has concluded his Himalayas and Mount Everest\u00a0trek\u00a0to rare awareness for\u00a0NORD and our community.\u00a0Ray made it\u00a0just past\u00a022,000 feet\u00a0of elevation, which marks\u00a0camp two of four before reaching the mountain\u2019s\u00a0summit.\u00a0According to Ray, climbing\u00a0Everest was an amazing lesson about how hard it is to\u00a0live\u00a0without enough oxygen.\u00a0While traveling home,\u00a0he\u00a0reflected on his journey by saying, \u201cAlthough\u00a0I\u00a0can never fully\u00a0understand\u00a0what\u00a0those with rare diseases like pulmonary arterial hypertension go through every day of,\u00a0I\u00a0felt\u00a0what it is like to struggle for oxygen with each step.\u00a0This\u00a0experience has\u00a0only\u00a0increased\u00a0my\u00a0passion to create\u00a0the\u00a0next generation\u00a0of\u00a0medicines to help\u00a0combat\u00a0pulmonary and rare diseases.\u201d<\/span><\/p>\n<p><span data-contrast=\"none\">As for what is next,\u00a0Ray says that he\u00a0will try again next year with more knowledge and experience under\u00a0his\u00a0belt.\u00a0He has no plans to\u00a0give up on either of\u00a0his\u00a0goals to reach the\u00a0top of Everest\u00a0or\u00a0to develop next generation medicines for\u00a0those with\u00a0rare diseases.\u00a0In the words of Ray,\u00a0\u201cStay tuned, the journey is not over.\u201d<\/span><\/p>\n<p><span data-contrast=\"none\">We would like to thank\u00a0Ray\u00a0for\u00a0his\u00a0commitment to raising awareness\u00a0for rare diseases\u00a0and look forward to seeing him take on the challenge next\u00a0year.<\/span><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Ray Stevens, rare disease\u00a0researcher,\u00a0advocate,\u00a0and adventure seeker, has concluded his Himalayas and Mount Everest\u00a0trek\u00a0to rare awareness for\u00a0NORD and our community.\u00a0Ray made it\u00a0just past\u00a022,000 feet\u00a0of elevation, which marks\u00a0camp two of four before &hellip; <\/p>\n<p class=\"link-more\"><a href=\"https:\/\/rarediseases.org\/es\/ray-stevens-rare-disease-reflections-from-22000-feet\/\" class=\"more-link\">Continue reading<span class=\"screen-reader-text\"> &#8220;Ray Stevens\u2019 Rare Disease Reflections from 22,000 Feet&#8221;<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":13143,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"footnotes":""},"categories":[232,192,505,193],"tags":[253,280,2729,2730],"class_list":["post-59279","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-advocacy","category-patients-members","category-patient-stories","category-research","tag-advocacy","tag-awareness","tag-mount-everest","tag-ray-stevens"],"acf":[],"_links":{"self":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/59279","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/comments?post=59279"}],"version-history":[{"count":0,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/59279\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media\/13143"}],"wp:attachment":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media?parent=59279"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/categories?post=59279"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/tags?post=59279"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}