{"id":59283,"date":"2021-07-16T13:30:17","date_gmt":"2021-07-16T17:30:17","guid":{"rendered":"https:\/\/rarediseases.org\/looking-back-at-an-unforgettable-2021-living-rare-living-stronger-forum\/"},"modified":"2021-07-16T13:30:17","modified_gmt":"2021-07-16T17:30:17","slug":"looking-back-at-an-unforgettable-2021-living-rare-living-stronger-forum","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/looking-back-at-an-unforgettable-2021-living-rare-living-stronger-forum\/","title":{"rendered":"Looking Back at an Unforgettable 2021 Living Rare, Living Stronger Forum"},"content":{"rendered":"<p>Last month, the National Organization for Rare Disorders (NORD) hosted their second virtual <a href=\"https:\/\/livingrare.org\/\" rel=\"nofollow noopener\" target=\"_blank\">Living Rare, Living Stronger NORD Patient &amp; Family Forum<\/a>. From June 25-28, enthusiastic attendees from around the globe tuned in live for a unique weekend of inspirational stories, educational workshops, expert speakers, networking opportunities, and the Rare Impact Awards.<\/p>\n<h2>Highlights from a Weekend of Connection and Education<\/h2>\n<ul>\n<li>Nearly <strong>700<\/strong> total conference registrants, including over <strong>500<\/strong> first time attendees<\/li>\n<li>Over <strong>500<\/strong> attendees signed up for discussion groups or 1:1 networking meetings<\/li>\n<li>Between <strong>four <\/strong>plenaries and <strong>12 <\/strong>breakout sessions, NORD invited more than <strong>60 speakers<\/strong> internationally and from the US to speak in the virtual program<\/li>\n<li><strong>Two<\/strong> Apple Watch winners selected from <strong>350 entries<\/strong> \u2013 with <strong>one<\/strong> still to give away to on-demand viewers!<\/li>\n<li>Many more prizes, games, and a tie for <strong>first<\/strong> on the conference leaderboard<\/li>\n<li><strong>40<\/strong> conference sponsors, exhibitors and supporters \u2013 headlined by gold sponsor Horizon<\/li>\n<li><strong>Six <\/strong>media and publication partners<\/li>\n<\/ul>\n<h2>A Star-Studded Awards Show<\/h2>\n<ul>\n<li>The packed weekend concluded with the celebration of <strong>the Rare Impact Awards<\/strong>, hosted by Dr. John Whyte of WebMD<\/li>\n<li><strong>12 <\/strong>Rare Impact Award honorees and <strong>nine <\/strong>Industry Innovation Award recipients<\/li>\n<li>The Abbey S. Meyers Leadership Award to the<strong> Desmoid Tumor Research Foundation <\/strong><\/li>\n<li>The Public Health Leadership Award to<strong> Peter Marks, MD <\/strong><\/li>\n<li>Special Recognition to<strong> Christopher Austin, MD<\/strong><\/li>\n<li><strong>Three <\/strong>electric performances by Ali Stroker and special appearances from actress Denise Richards and TLC singer Tionne \u201cT-Boz\u201d Watkins<\/li>\n<\/ul>\n<h2>Content Available On-Demand! Get Access Now<\/h2>\n<p>You haven\u2019t missed your chance to access (or revisit!) all the Patient &amp; Family Forum dynamic content!<\/p>\n<ul>\n<li><strong><a href=\"https:\/\/nord.cventevents.com\/event\/b36932ce-27a7-4b1f-98ec-a0f5750fbb23\/register\" rel=\"nofollow noopener\" target=\"_blank\">Registration is still open for those who want to access!<\/a><\/strong><\/li>\n<li>All session content, resources, the Rare Impact Awards and the exhibit hall are available until <strong>Wednesday, July 28. <\/strong><\/li>\n<li>Register and complete your conference surveys for a chance to win the final Apple Watch.<\/li>\n<\/ul>\n<h2>What People are Saying \u2013 Attendee Testimonials<\/h2>\n<ul>\n<li>\u201cI found wonderful tidbits in every talk\u2026 NORD is a wonderful resource for patients, caregivers, and even doctors.\u201d &#8211; Tracey, Caregiver<\/li>\n<li>\u201cIt always gives me hope and energy to go to NORD events. So many people who are motivated to help!\u201d &#8211; Sara, Advocate<\/li>\n<li>\u201cThe interactive participation of the audience using the chat feature helped me feel more a part of the activity. I thoroughly enjoyed hearing about other organizations and resources out there for the Rare community.\u201d &#8211; Connie, Speaker<\/li>\n<li>\u201cI have made some great connections and it&#8217;s amazing how helpful certain people have been. I feel I&#8217;ve made a huge stride forward today.\u201d &#8211; Natasha, Caregiver<\/li>\n<li>\u201cDepth of encouragement and support from the speakers and the live chats, Even just viewing a few slices of the NORD resources, this program clearly demonstrates the amazing breadth, commitment and expertise available through NORD.\u201d &#8211; Jim, Caregiver<\/li>\n<li>\u201cBeing kind of new to this world and not having found a lot of other people just like me, it&#8217;s so valuable to know that there are other advocates and programs out there already, so we really don&#8217;t have to recreate the wheel. I can jump in with what others have going or can connect with them to start something of my own using their advice and knowledge base.\u201d &#8211; Anna, Caregiver<\/li>\n<\/ul>\n<h2>Join Us in 2022!<\/h2>\n<p>The <a href=\"https:\/\/livingrare.org\/\" rel=\"nofollow noopener\" target=\"_blank\">Living Rare, Living Stronger Forum<\/a> will be back next year. Stay tuned for more details, registration, and opportunities to partner with NORD.<\/p>\n<p>For more rare disease information, visit <a href=\"https:\/\/rarediseases.org\/for-patients-and-families\/information-resources\/rare-disease-information\/\">NORD\u2019s Rare Disease Database<\/a>.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Last month, the National Organization for Rare Disorders (NORD) hosted their second virtual Living Rare, Living Stronger NORD Patient &amp; Family Forum. From June 25-28, enthusiastic attendees from around the &hellip; <\/p>\n<p class=\"link-more\"><a href=\"https:\/\/rarediseases.org\/es\/looking-back-at-an-unforgettable-2021-living-rare-living-stronger-forum\/\" class=\"more-link\">Continue reading<span class=\"screen-reader-text\"> &#8220;Looking Back at an Unforgettable 2021 Living Rare, Living Stronger Forum&#8221;<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"footnotes":""},"categories":[192],"tags":[1814,2296,1815,225,2744,2745,315,930],"class_list":["post-59283","post","type-post","status-publish","format-standard","hentry","category-patients-members","tag-living-rare","tag-living-rare-living-stronger-patient-and-family-form","tag-living-stronger","tag-nord","tag-patient-and-family-forum","tag-rare","tag-rare-disease","tag-rare-impact-awards"],"acf":[],"_links":{"self":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/59283","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/comments?post=59283"}],"version-history":[{"count":0,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/59283\/revisions"}],"wp:attachment":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media?parent=59283"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/categories?post=59283"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/tags?post=59283"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}