{"id":59303,"date":"2021-05-26T08:00:00","date_gmt":"2021-05-26T12:00:00","guid":{"rendered":"https:\/\/rarediseases.org\/rare-voices-of-nord-jo-ann-dangelo\/"},"modified":"2021-05-26T08:00:00","modified_gmt":"2021-05-26T12:00:00","slug":"rare-voices-of-nord-jo-ann-dangelo","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/rare-voices-of-nord-jo-ann-dangelo\/","title":{"rendered":"Rare Voices of NORD: Jo-Ann D&#8217;Angelo"},"content":{"rendered":"<p>On the show today, Matthew Zachary welcomes Jo-Ann D&#8217;Angelo, a Parry-Romberg syndrome patient and the Founder of The Parry-Romberg Syndrome Foundation. PRS, as it is known in acronym land, is an extremely rare facial disfigurement that impacts the bone, muscle, and dental only on one side of the face. There is no cure, and the only treatment is invasive plastic surgery that only impacts the appearance and doesn&#8217;t address any underlying conditions. Jo-Ann is an extraordinary human being who very bravely shares her remarkable story with us today. She is currently going through the &#8220;NORD RareLaunch: Forming a Foundation&#8221; program which is helping to incubate and accelerate her nonprofit ambitions. She is a consummate example of how one person can make a difference for so many others.&nbsp;Enjoy the show.<\/p>\n<p>Follow us on social @NORDpodcast<\/p>\n<p>See Privacy Policy at <a href=\"https:\/\/art19.com\/privacy\" rel=\"noopener noreferrer nofollow\" target=\"_blank\">https:\/\/art19.com\/privacy<\/a> and California Privacy Notice at <a href=\"https:\/\/art19.com\/privacy#do-not-sell-my-info\" rel=\"noopener noreferrer nofollow\" target=\"_blank\">https:\/\/art19.com\/privacy#do-not-sell-my-info<\/a>.<\/p>\n<p><strong><a href=\"https:\/\/chrt.fm\/track\/758825\/rss.art19.com\/episodes\/70ad93c4-85ff-44aa-b065-1458d2ae02a3.mp3?rss_browser=BAhJIgxNb3ppbGxhBjoGRVQ%3D--4f04cd103bfdd3e94cbbb356ead53321a4d63e94\" target=\"_blank\" rel=\"noopener nofollow\">Be sure to listen, download and subscribe!<\/a><\/strong><\/p>\n","protected":false},"excerpt":{"rendered":"<p>On the show today, Matthew Zachary welcomes Jo-Ann D&#8217;Angelo, a Parry-Romberg syndrome patient and the Founder of The Parry-Romberg Syndrome Foundation. PRS, as it is known in acronym land, is &hellip; <\/p>\n<p class=\"link-more\"><a href=\"https:\/\/rarediseases.org\/es\/rare-voices-of-nord-jo-ann-dangelo\/\" class=\"more-link\">Continue reading<span class=\"screen-reader-text\"> &#8220;Rare Voices of NORD: Jo-Ann D&#8217;Angelo&#8221;<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"footnotes":""},"categories":[],"tags":[2803,2229,2804,1814,2802,2799,1333,1278,225,2805,360,798,2046,2045,797,315,209,219,228,2798,2800,2399,1521,1334,2801],"class_list":["post-59303","post","type-post","status-publish","format-standard","hentry","tag-community","tag-covid-19","tag-digital-health","tag-living-rare","tag-living-strong","tag-matthew-zachary","tag-mike-porath","tag-national-organization-for-rare-disorders","tag-nord","tag-nordpod","tag-peter-saltonstall","tag-rare-cancer","tag-rare-cancer-coalition","tag-rare-cancer-day","tag-rare-cancers","tag-rare-disease","tag-rare-disease-community","tag-rare-disease-day","tag-rare-diseases","tag-stupid-cancer","tag-stupid-cancer-show","tag-telehealth","tag-telemedicine","tag-the-mighty","tag-voice-of-rare-disease"],"acf":[],"_links":{"self":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/59303","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/comments?post=59303"}],"version-history":[{"count":0,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/59303\/revisions"}],"wp:attachment":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media?parent=59303"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/categories?post=59303"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/tags?post=59303"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}