{"id":59308,"date":"2021-03-17T09:00:00","date_gmt":"2021-03-17T13:00:00","guid":{"rendered":"https:\/\/rarediseases.org\/a-conversation-with-yann-le-cam-eurodis-co-founder-and-chief-executive\/"},"modified":"2021-03-17T09:00:00","modified_gmt":"2021-03-17T13:00:00","slug":"a-conversation-with-yann-le-cam-eurodis-co-founder-and-chief-executive","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/a-conversation-with-yann-le-cam-eurodis-co-founder-and-chief-executive\/","title":{"rendered":"A Conversation With Yann Le Cam: EURODIS Co-Founder and Chief Executive"},"content":{"rendered":"

On the show today \u2014 we\u2019ve got a big one or you \u2014 Yann Le Cam<\/a>, Co-Founder and Chief Executive Officer of EURODIS<\/a> and Rare Diseases International<\/a> \u2014 and \u201cenraged rare disease advocate\u201d, as the media have hailed him. We only recently celebrated Rare Disease Day 2021 on February 28th so we thank all of you who participated and remind those who could not that anyone can be a rare disease advocate and activist 24\/7\/365 by visiting RareDiseaseDay.com. Jann and I talk about the history of rare disease advocacy, his personal experience raising a daughter with Cystic Fibrosis, the lessons he\u2019s learned leading the space over the past 30 years, and what we can all look forward to over the next decade.<\/p>\n

Follow us on social @NORDpodcast<\/p>\n

See Privacy Policy at https:\/\/art19.com\/privacy<\/a> and California Privacy Notice at https:\/\/art19.com\/privacy#do-not-sell-my-info<\/a>.<\/p>\n

Be sure to listen, download and subscribe!<\/a><\/strong><\/p>\n","protected":false},"excerpt":{"rendered":"

On the show today \u2014 we\u2019ve got a big one or you \u2014 Yann Le Cam, Co-Founder and Chief Executive Officer of EURODIS and Rare Diseases International \u2014 and \u201cenraged … <\/p>\n

Continue reading “A Conversation With Yann Le Cam: EURODIS Co-Founder and Chief Executive”<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"footnotes":""},"categories":[],"tags":[2803,2229,2804,2808,2807,1814,2802,2799,1333,1278,225,2805,360,798,2046,2045,797,315,209,219,228,229,571,2798,2800,2399,1521,1334,2801],"class_list":["post-59308","post","type-post","status-publish","format-standard","hentry","tag-community","tag-covid-19","tag-digital-health","tag-eurodis","tag-jann-le-cam","tag-living-rare","tag-living-strong","tag-matthew-zachary","tag-mike-porath","tag-national-organization-for-rare-disorders","tag-nord","tag-nordpod","tag-peter-saltonstall","tag-rare-cancer","tag-rare-cancer-coalition","tag-rare-cancer-day","tag-rare-cancers","tag-rare-disease","tag-rare-disease-community","tag-rare-disease-day","tag-rare-diseases","tag-rare-diseases-europe","tag-rare-diseases-international","tag-stupid-cancer","tag-stupid-cancer-show","tag-telehealth","tag-telemedicine","tag-the-mighty","tag-voice-of-rare-disease"],"acf":[],"_links":{"self":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/59308","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/comments?post=59308"}],"version-history":[{"count":0,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/59308\/revisions"}],"wp:attachment":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media?parent=59308"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/categories?post=59308"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/tags?post=59308"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}