{"id":59313,"date":"2020-11-18T11:00:00","date_gmt":"2020-11-18T16:00:00","guid":{"rendered":"https:\/\/rarediseases.org\/sarah-hill-a-young-life-interrupted\/"},"modified":"2020-11-18T11:00:00","modified_gmt":"2020-11-18T16:00:00","slug":"sarah-hill-a-young-life-interrupted","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/sarah-hill-a-young-life-interrupted\/","title":{"rendered":"Sarah Hill: A Young Life, Interrupted"},"content":{"rendered":"<p>Today\u2019s show is all about one patient\u2019s story navigating the world of rare disease, you know \u2013 the club you didn\u2019t ask to join, but somehow, once you\u2019re here, you\u2019re kind of family? <a href=\"https:\/\/www.linkedin.com\/in\/sarah-hill-464075186\/\" rel=\"noopener noreferrer nofollow\" target=\"_blank\">Sarah Hil<\/a>l had a life interrupted at a very young age. After being fabulously misdiagnosed and not taken seriously for years, at the age of 16, all of the dots finally connected, and it was correctly identified that she had Wolfram Syndrome. This one\u2019s a heavy hitter, folks. Wolfram is a rare autosomal-recessive genetic disorder that causes childhood-onset diabetes insipidus, diabetes mellitus, optic atrophy, deafness, and various other possible disorders. Isn\u2019t it hard enough to be \u201cWELL\u201d in your teens and twenties, let alone slapped with a life-changing health condition you didn\u2019t ask for? Ladies and gentlemen \u2014 Sarah Hill.<\/p>\n<p>Follow us on social @NORDpodcast<\/p>\n<p>See Privacy Policy at <a href=\"https:\/\/art19.com\/privacy\" rel=\"noopener noreferrer nofollow\" target=\"_blank\">https:\/\/art19.com\/privacy<\/a> and California Privacy Notice at <a href=\"https:\/\/art19.com\/privacy#do-not-sell-my-info\" rel=\"noopener noreferrer nofollow\" target=\"_blank\">https:\/\/art19.com\/privacy#do-not-sell-my-info<\/a>.<\/p>\n<p><strong><a href=\"https:\/\/chrt.fm\/track\/758825\/rss.art19.com\/episodes\/ac7b695e-8bcb-49b9-a0d3-f58b8a124c55.mp3?rss_browser=BAhJIgxNb3ppbGxhBjoGRVQ%3D--4f04cd103bfdd3e94cbbb356ead53321a4d63e94\" target=\"_blank\" rel=\"noopener nofollow\">Be sure to listen, download and subscribe!<\/a><\/strong><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Today\u2019s show is all about one patient\u2019s story navigating the world of rare disease, you know \u2013 the club you didn\u2019t ask to join, but somehow, once you\u2019re here, you\u2019re &hellip; <\/p>\n<p class=\"link-more\"><a href=\"https:\/\/rarediseases.org\/es\/sarah-hill-a-young-life-interrupted\/\" class=\"more-link\">Continue reading<span class=\"screen-reader-text\"> &#8220;Sarah Hill: A Young Life, Interrupted&#8221;<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"footnotes":""},"categories":[],"tags":[2803,2229,2822,2825,2823,2804,1814,2802,2799,1333,1278,225,2805,2824,360,798,2046,2045,797,315,209,219,228,2798,2800,2399,1521,1334,2801,2821],"class_list":["post-59313","post","type-post","status-publish","format-standard","hentry","tag-community","tag-covid-19","tag-deafness","tag-diabetes-insipidus","tag-diabetes-mellitus","tag-digital-health","tag-living-rare","tag-living-strong","tag-matthew-zachary","tag-mike-porath","tag-national-organization-for-rare-disorders","tag-nord","tag-nordpod","tag-optic-atrophy","tag-peter-saltonstall","tag-rare-cancer","tag-rare-cancer-coalition","tag-rare-cancer-day","tag-rare-cancers","tag-rare-disease","tag-rare-disease-community","tag-rare-disease-day","tag-rare-diseases","tag-stupid-cancer","tag-stupid-cancer-show","tag-telehealth","tag-telemedicine","tag-the-mighty","tag-voice-of-rare-disease","tag-wolfram-syndrome"],"acf":[],"_links":{"self":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/59313","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/comments?post=59313"}],"version-history":[{"count":0,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/59313\/revisions"}],"wp:attachment":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media?parent=59313"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/categories?post=59313"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/tags?post=59313"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}