{"id":59355,"date":"2021-12-14T14:00:52","date_gmt":"2021-12-14T19:00:52","guid":{"rendered":"https:\/\/rarediseases.org\/how-to-light-up-for-rare-rare-disease-day-2022\/"},"modified":"2021-12-14T14:00:52","modified_gmt":"2021-12-14T19:00:52","slug":"how-to-light-up-for-rare-rare-disease-day-2022","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/how-to-light-up-for-rare-rare-disease-day-2022\/","title":{"rendered":"How to Light Up for Rare \u2013 Rare Disease Day 2022"},"content":{"rendered":"

Rare Disease Day is a day of awareness for the\u00a0over 7,000 rare diseases that impact over 300 million people globally!<\/span>\u00a0<\/span><\/p>\n

As the\u00a0US\u00a0sponsor for Rare Disease Day,\u00a0NORD\u00a0is leading the call\u00a0to\u00a0light up the country\u00a0in rare disease colors\u00a0and unite\u00a0both\u00a0the rare disease community\u00a0and the country as a whole.\u00a0The more buildings, landmarks and monuments illuminated, the greater\u00a0the\u00a0impact!\u00a0The goal of Light Up for Rare is to help spread the word and raise awareness for people living with a rare disease.\u00a0Anyone can contribute\u00a0to Light Up for Rare,\u00a0and as our country lights up, we must remember that\u00a0\u2018Alone, we are\u00a0rare. Together,\u00a0we are strong\u2019.<\/span>\u00a0<\/span><\/p>\n

NORD is here to help! If you are looking to provide lights to a building or monument, or hope to light up your home or neighborhood, we recommend <\/span>NovaBright<\/span><\/a> – to light with the three rare disease colors using this equipment, you would need three individual lights, one using each color. Feel free to do additional research to find your choice for effective lights for the building or landmark in question. We have also created<\/span>\u00a0<\/span>a\u00a0template\u00a0request<\/span><\/a>\u00a0<\/span>for\u00a0your\u00a0use,\u00a0to\u00a0make the\u00a0#LightUpForRare\u00a0request of\u00a0buildings and landmarks\u00a0in your city, town or village.<\/span>\u00a0<\/span><\/p>\n

Additionally, our sister organization, EURODIS has created several effective resources to Light Up for Rare and join the global Chain of Lights. Download <\/span>the\u00a0#LightUpForRare\u00a0toolkit here<\/span><\/a>\u00a0and review\u00a0their\u00a0<\/span>how-to\u00a0illuminate a building\u00a0one pager here<\/span><\/a>.<\/span>\u00a0<\/span><\/p>\n

Join the effort to Light Up for Rare in\u00a0<\/span>three easy steps<\/span><\/a>!<\/span>\u00a0<\/span><\/p>\n

    \n
  1. Sign Up<\/span><\/b>\u00a0<\/span><\/li>\n
  2. Light Up<\/span><\/b>\u00a0<\/span><\/li>\n
  3. Share<\/span><\/b>\u00a0<\/span><\/li>\n<\/ol>\n

    Once the buildings and landmarks are lit up in Rare Disease Day colors,\u00a0share a picture on social media.\u00a0Tag NORD and use #RareDiseaseDay and #ShowYourStripes,\u00a0so the entire community can see what we have done to shine a light on rare disease!<\/span>\u00a0<\/span><\/p>\n

    On February 28<\/span>th<\/span>, on behalf of over 25 million Americans and their families, let\u2019s\u00a0#LightUpForRare!<\/span>\u00a0<\/span><\/p>\n","protected":false},"excerpt":{"rendered":"

    Rare Disease Day is a day of awareness for the\u00a0over 7,000 rare diseases that impact over 300 million people globally!\u00a0 As the\u00a0US\u00a0sponsor for Rare Disease Day,\u00a0NORD\u00a0is leading the call\u00a0to\u00a0light up … <\/p>\n

    Continue reading “How to Light Up for Rare \u2013 Rare Disease Day 2022”<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"footnotes":""},"categories":[662,1827],"tags":[2885,1834,224,2886,315,219,437,255],"class_list":["post-59355","post","type-post","status-publish","format-standard","hentry","category-get-involved","category-rare-disease-day","tag-lightupforrare","tag-showyourstripes","tag-eurordis","tag-global-chain-of-lights","tag-rare-disease","tag-rare-disease-day","tag-rare-disorders","tag-rdd"],"acf":[],"_links":{"self":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/59355","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/comments?post=59355"}],"version-history":[{"count":0,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/59355\/revisions"}],"wp:attachment":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media?parent=59355"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/categories?post=59355"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/tags?post=59355"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}