{"id":59360,"date":"2021-12-22T14:00:40","date_gmt":"2021-12-22T19:00:40","guid":{"rendered":"https:\/\/rarediseases.org\/nord-gives-back-partnership-and-connection\/"},"modified":"2022-12-02T08:14:36","modified_gmt":"2022-12-02T13:14:36","slug":"nord-gives-back-partnership-and-connection","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/nord-gives-back-partnership-and-connection\/","title":{"rendered":"NORD Gives Back: Partnership and Connection"},"content":{"rendered":"<p><span data-contrast=\"none\">It\u2019s the holiday season,\u00a0so let\u2019s\u00a0take time to celebrate\u00a0the rare disease community.\u00a0During this joyful time,\u00a0the National Organization for Rare Disorders (NORD) is sharing formerly exclusive, paid content from our 2021 virtual Living Rare, Living Stronger Patient and Family Forum. From engaging plenaries to breakout sessions to speakers from across the globe, the dynamic content from the conference is here to help you live your best rare life.\u00a0\u00a0\u00a0<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:259}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"none\">One of the rare community&#8217;s strengths comes from togetherness. This #NORDGivesBack content focuses on that strength and the benefits of having support. Enjoy this amazing new video resource and Happy Holidays!<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335551550&quot;:1,&quot;335551620&quot;:1,&quot;335559739&quot;:160,&quot;335559740&quot;:259}\">\u00a0<\/span><\/p>\n<p><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335551550&quot;:1,&quot;335551620&quot;:1,&quot;335559739&quot;:160,&quot;335559740&quot;:259}\">\u00a0<\/span><\/p>\n<p><b><span data-contrast=\"none\">The Patient Professional\u00a0Partnership<\/span><\/b><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:259}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"none\"><iframe loading=\"lazy\" title=\"YouTube video player\" src=\"https:\/\/www.youtube.com\/embed\/WKHPsQXBRmk\" width=\"560\" height=\"315\" frameborder=\"0\" allowfullscreen=\"allowfullscreen\"><\/iframe><\/span><\/p>\n<p><span data-contrast=\"auto\">This opening session focused on how people living with rare diseases and clinicians and researchers seeking to help them often develop unique and mutually rewarding partnerships.\u00a0Watch now to see the panelists share how successful collaboration can benefit both the rare disease patient and the professional who is a part of their care team or researching their disease.<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:259}\">\u00a0<\/span><\/p>\n<p><b><span data-contrast=\"none\">Finding Your Community and Building Your Support Network<\/span><\/b><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:259}\">\u00a0<\/span><br \/>\n<iframe loading=\"lazy\" title=\"YouTube video player\" src=\"https:\/\/www.youtube.com\/embed\/jPT8eFKcUhE\" width=\"560\" height=\"315\" frameborder=\"0\" allowfullscreen=\"allowfullscreen\"><\/iframe><\/p>\n<p><span data-contrast=\"none\">This session explores ways to find your community within the rare disease family and build a network of others who have shared experiences. Tune in to hear from an all-star panel on how they found their community and their tips so you can do the same!<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:259}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"none\">Connect with others and pass on these resources and your thanks this season. #NORDGivesBack<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:259}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"none\">Access the\u00a0<\/span><span data-contrast=\"none\">full playlist<\/span><span data-contrast=\"none\">\u00a0on YouTube today. Subscribe to\u00a0<\/span><span data-contrast=\"none\">NORD\u2019s channel<\/span><span data-contrast=\"none\">\u00a0to be alerted to new videos as soon as they are released.<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:259}\">\u00a0<\/span><\/p>\n<p><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:259}\">\u00a0<\/span><\/p>\n","protected":false},"excerpt":{"rendered":"<p>It\u2019s the holiday season,\u00a0so let\u2019s\u00a0take time to celebrate\u00a0the rare disease community.\u00a0During this joyful time,\u00a0the National Organization for Rare Disorders (NORD) is sharing formerly exclusive, paid content from our 2021 virtual &hellip; <\/p>\n<p class=\"link-more\"><a href=\"https:\/\/rarediseases.org\/es\/nord-gives-back-partnership-and-connection\/\" class=\"more-link\">Continue reading<span class=\"screen-reader-text\"> &#8220;NORD Gives Back: Partnership and Connection&#8221;<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"footnotes":""},"categories":[192],"tags":[1997,1814,2296,2879,209],"class_list":["post-59360","post","type-post","status-publish","format-standard","hentry","category-patients-members","tag-livingrareforum","tag-living-rare","tag-living-rare-living-stronger-patient-and-family-form","tag-nordgivesback","tag-rare-disease-community"],"acf":[],"_links":{"self":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/59360","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/comments?post=59360"}],"version-history":[{"count":0,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/59360\/revisions"}],"wp:attachment":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media?parent=59360"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/categories?post=59360"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/tags?post=59360"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}