{"id":59387,"date":"2022-02-26T01:14:53","date_gmt":"2022-02-26T06:14:53","guid":{"rendered":"https:\/\/rarediseases.org\/rare-disease-day-2022-with-actor-adam-rose\/"},"modified":"2022-02-26T01:14:53","modified_gmt":"2022-02-26T06:14:53","slug":"rare-disease-day-2022-with-actor-adam-rose","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/rare-disease-day-2022-with-actor-adam-rose\/","title":{"rendered":"Rare Disease Day 2022 with actor Adam Rose"},"content":{"rendered":"<p>Welcome to Season Four of NORDpod, the voice of rare disease. Kicking off 2022, and in recognition of <a href=\"https:\/\/www.rarediseaseday.org\/\" rel=\"noopener noreferrer nofollow\" target=\"_blank\">Rare Disease Day<\/a>, we are proud to welcome actor and social media influencer <a href=\"https:\/\/www.tiktok.com\/@realadamrose?lang=en\" rel=\"noopener noreferrer nofollow\" target=\"_blank\">Adam Rose<\/a>. Adam has amassed a considerable fan base by creating relatable, entertaining, and insightful video segments on TikTok, often sporting a blue cardigan. He is also a rare disease patient, advocate, and activist sharing his story about living with <a href=\"https:\/\/www.hopkinsmedicine.org\/health\/conditions-and-diseases\/gaucher-disease\" rel=\"noopener noreferrer nofollow\" target=\"_blank\">Gaucher\u2019s Disease<\/a>.<\/p>\n<p>Rare Disease Day is committed to raising awareness for the community. This annual commemoration is focused on the theme of health equity. Part of health care inequity involves a lack of access to an accurate and timely diagnosis, treatment, and information about your disease. By raising awareness and showing your stripes, you can help improve the visibility of rare diseases.<\/p>\n<p>NORDpod is the official podcast of the <a href=\"https:\/\/rarediseases.org\/\" rel=\"noopener noreferrer\" target=\"_blank\">National Organization for Rare Disorders<\/a>. For more information, visit <a href=\"https:\/\/rarediseases.org\/\" rel=\"noopener noreferrer\" target=\"_blank\">https:\/\/rarediseases.org<\/a>.<\/p>\n<p>See Privacy Policy at <a href=\"https:\/\/art19.com\/privacy\" rel=\"noopener noreferrer nofollow\" target=\"_blank\">https:\/\/art19.com\/privacy<\/a> and California Privacy Notice at <a href=\"https:\/\/art19.com\/privacy#do-not-sell-my-info\" rel=\"noopener noreferrer nofollow\" target=\"_blank\">https:\/\/art19.com\/privacy#do-not-sell-my-info<\/a>.<\/p>\n<p><strong><a href=\"https:\/\/chrt.fm\/track\/758825\/rss.art19.com\/episodes\/2c4e9128-e2e7-49cd-aced-620aad98d209.mp3?rss_browser=BAhJIgxNb3ppbGxhBjoGRVQ%3D--4f04cd103bfdd3e94cbbb356ead53321a4d63e94\" target=\"_blank\" rel=\"noopener nofollow\">Be sure to listen, download and subscribe!<\/a><\/strong><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Welcome to Season Four of NORDpod, the voice of rare disease. Kicking off 2022, and in recognition of Rare Disease Day, we are proud to welcome actor and social media &hellip; <\/p>\n<p class=\"link-more\"><a href=\"https:\/\/rarediseases.org\/es\/rare-disease-day-2022-with-actor-adam-rose\/\" class=\"more-link\">Continue reading<span class=\"screen-reader-text\"> &#8220;Rare Disease Day 2022 with actor Adam Rose&#8221;<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"footnotes":""},"categories":[],"tags":[2921,2803,2229,2804,1814,2802,2799,1333,1278,225,2805,360,798,2046,2045,797,315,209,219,2934,228,2798,2800,2399,1521,1334,2801],"class_list":["post-59387","post","type-post","status-publish","format-standard","hentry","tag-adam-rose","tag-community","tag-covid-19","tag-digital-health","tag-living-rare","tag-living-strong","tag-matthew-zachary","tag-mike-porath","tag-national-organization-for-rare-disorders","tag-nord","tag-nordpod","tag-peter-saltonstall","tag-rare-cancer","tag-rare-cancer-coalition","tag-rare-cancer-day","tag-rare-cancers","tag-rare-disease","tag-rare-disease-community","tag-rare-disease-day","tag-rare-disease-day-2022","tag-rare-diseases","tag-stupid-cancer","tag-stupid-cancer-show","tag-telehealth","tag-telemedicine","tag-the-mighty","tag-voice-of-rare-disease"],"acf":[],"_links":{"self":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/59387","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/comments?post=59387"}],"version-history":[{"count":0,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/59387\/revisions"}],"wp:attachment":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media?parent=59387"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/categories?post=59387"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/tags?post=59387"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}