{"id":59392,"date":"2022-03-15T12:14:34","date_gmt":"2022-03-15T16:14:34","guid":{"rendered":"https:\/\/rarediseases.org\/honoring-the-rock-stars-of-the-rare-disease-community-nord-announces-the-2022-rare-impact-award-honorees\/"},"modified":"2022-03-15T12:14:34","modified_gmt":"2022-03-15T16:14:34","slug":"honoring-the-rock-stars-of-the-rare-disease-community-nord-announces-the-2022-rare-impact-award-honorees","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/honoring-the-rock-stars-of-the-rare-disease-community-nord-announces-the-2022-rare-impact-award-honorees\/","title":{"rendered":"Honoring the Rock Stars of the Rare Disease Community: NORD Announces the 2022 Rare Impact Award Honorees"},"content":{"rendered":"

NORD\u2019s Rare Impact Award ceremony on June 26 will honor all those making strides to improve the lives of patients and families in the rare disease community<\/span><\/i>\u00a0<\/span><\/h3>\n

Cleveland, OH, March 15, 2022<\/span><\/b>\u2014Today, the National Organization for Rare Disorders (NORD\u00ae) announced the 2022 Rare Impact Award honorees. This list of outstanding individuals, organizations and industry innovators will be honored for exceptional work benefiting the US rare disease community during a live ceremony at the <\/span>Rock & Roll Hall of Fame in Cleveland, Ohio<\/span><\/b> on <\/span>Sunday, June 26, 2022, at 7:00pm ET<\/span><\/b>. The Rare Impact Awards program is part of the <\/span>Living Rare, Living Stronger NORD Patient and Family Forum<\/span><\/a>.<\/span>\u00a0<\/span><\/p>\n

\u201cThe nearly 30 million Americans living with a rare disease are more often fighting for recognition rather than the cures they deserve. NORD is grateful to partner with and recognize a few of these individuals, communities and organizations for their hard work by presenting them with Rare Impact Awards<\/span>,\u201d <\/span>said <\/span>Peter L. Saltonstall<\/span><\/b>, President and CEO, NORD. \u201cThe 2022 Rare Impact Award honorees represent a diverse and inspiring group, each making an impact on the rare community in a different way.\u201d\u00a0<\/span><\/p>\n

This year, the following caregivers, advocates, patients, and leaders are receiving a Rare Impact Award:<\/span>\u00a0<\/span><\/p>\n