{"id":59399,"date":"2022-04-20T08:00:00","date_gmt":"2022-04-20T12:00:00","guid":{"rendered":"https:\/\/rarediseases.org\/the-patient-experience-philip-bright\/"},"modified":"2022-04-20T08:00:00","modified_gmt":"2022-04-20T12:00:00","slug":"the-patient-experience-philip-bright","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/the-patient-experience-philip-bright\/","title":{"rendered":"The Patient Experience: Philip Bright"},"content":{"rendered":"

Today on NORDpod, Matthew Zachary<\/a> welcomes Phillip Bright, a senior at The University of Kentucky diagnosed with Hereditary Hemorrhagic Telangiectasia (HHT<\/a>) at a very young age and has lived an accelerated life facing this rare condition. HHT is a congenital dominant hereditary disorder in which some blood vessels do not develop properly. Phil subsequently lived with a small pulmonary arteriovenous malformation in my lung. As a rare disease patient, he decided to give back to the community and pursue a career in medicine. As of this taping, Phil was recently accepted to Medical School and is looking ahead to a lifetime of critical clinical research to improve the lives of patients like him. NORDpod is the official podcast of the National Organization for Rare Disorders<\/a>. For more information, email nordpod@rarediseases.org and visit https:\/\/rarediseases.org.<\/p>\n

See Privacy Policy at https:\/\/art19.com\/privacy<\/a> and California Privacy Notice at https:\/\/art19.com\/privacy#do-not-sell-my-info<\/a>.<\/p>\n

Be sure to listen, download and subscribe!<\/a><\/strong><\/p>\n","protected":false},"excerpt":{"rendered":"

Today on NORDpod, Matthew Zachary welcomes Phillip Bright, a senior at The University of Kentucky diagnosed with Hereditary Hemorrhagic Telangiectasia (HHT) at a very young age and has lived an … <\/p>\n

Continue reading “The Patient Experience: Philip Bright”<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"footnotes":""},"categories":[],"tags":[2803,2229,2804,1814,2802,2799,1333,1278,225,2805,360,798,2046,2045,797,315,209,219,228,2798,2800,2399,1521,1334,2801],"class_list":["post-59399","post","type-post","status-publish","format-standard","hentry","tag-community","tag-covid-19","tag-digital-health","tag-living-rare","tag-living-strong","tag-matthew-zachary","tag-mike-porath","tag-national-organization-for-rare-disorders","tag-nord","tag-nordpod","tag-peter-saltonstall","tag-rare-cancer","tag-rare-cancer-coalition","tag-rare-cancer-day","tag-rare-cancers","tag-rare-disease","tag-rare-disease-community","tag-rare-disease-day","tag-rare-diseases","tag-stupid-cancer","tag-stupid-cancer-show","tag-telehealth","tag-telemedicine","tag-the-mighty","tag-voice-of-rare-disease"],"acf":[],"_links":{"self":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/59399","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/comments?post=59399"}],"version-history":[{"count":0,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/59399\/revisions"}],"wp:attachment":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media?parent=59399"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/categories?post=59399"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/tags?post=59399"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}