{"id":59406,"date":"2022-04-29T17:01:43","date_gmt":"2022-04-29T21:01:43","guid":{"rendered":"https:\/\/rarediseases.org\/nord-announces-over-100000-in-grant-funding-available-for-rare-disease-research\/"},"modified":"2022-04-29T17:01:43","modified_gmt":"2022-04-29T21:01:43","slug":"nord-announces-over-100000-in-grant-funding-available-for-rare-disease-research","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/nord-announces-over-100000-in-grant-funding-available-for-rare-disease-research\/","title":{"rendered":"NORD Announces over $100,000 in Grant Funding Available for Rare Disease Research"},"content":{"rendered":"<h3><i><span data-contrast=\"auto\">Three RFPs Now Open for Qualified Researchers through NORD\u2019s Jayne Holtzer Rare Disease Research Grants Program<\/span><\/i><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335551550&quot;:2,&quot;335551620&quot;:2,&quot;335559739&quot;:160,&quot;335559740&quot;:276}\">\u00a0<\/span><\/h3>\n<p><b><span data-contrast=\"auto\">April 29, 2022, Washington, DC<\/span><\/b><span data-contrast=\"auto\"> \u2013 Today, the National Organization for Rare Disorders (NORD\u00ae) announced three new requests for proposal (RFP) for grant funding related to the following rare diseases: Autoimmune Polyglandular Syndrome Type 1 (<\/span><a href=\"https:\/\/rarediseases.org\/rare-diseases\/autoimmune-polyglandular-syndrome-type-1\/\"><span data-contrast=\"none\">APS-1<\/span><\/a><span data-contrast=\"auto\">), Levy-Yeboa Syndrome (<\/span><a href=\"https:\/\/rarediseases.org\/rare-diseases\/levy-yeboa-syndrome\/#:~:text=Levy%2DYeboa%20syndrome%20(LYS),like%20eruptions%20of%20the%20skin\"><span data-contrast=\"none\">LYS<\/span><\/a><span data-contrast=\"auto\">), and Megacystis Microcolon Intestinal Hypoperistalsis Syndrome (<\/span><a href=\"https:\/\/rarediseases.org\/gard-rare-disease\/megacystis-microcolon-intestinal-hypoperistalsis-syndrome\/\"><span data-contrast=\"none\">MMIHS<\/span><\/a><span data-contrast=\"auto\">). The NORD Jayne Holtzer Rare Disease Research Grants Program provides seed-money grants to qualified investigators for scientific and clinical research. NORD\u2019s program provides grants for the study of diseases for which there are few other sources of funding.<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:276}\">\u00a0<\/span><\/p>\n<ul>\n<li><span data-contrast=\"auto\">W<\/span><span data-contrast=\"none\">ith funding from the <\/span><a href=\"https:\/\/apstype1.org\/\" rel=\"nofollow noopener\" target=\"_blank\"><span data-contrast=\"none\">APS Type 1 Foundation<\/span><\/a><span data-contrast=\"none\">, NORD is accepting applications for <\/span><b><span data-contrast=\"none\">one grant of $50,000<\/span><\/b><span data-contrast=\"none\"> for scientific and\/or clinical research studies related to <\/span><b><span data-contrast=\"none\">APS-1<\/span><\/b><span data-contrast=\"none\">.\u202fDeadline for letters of intent is <\/span><b><span data-contrast=\"none\">Tuesday, June 21<\/span><\/b><span data-contrast=\"none\">. <\/span><a href=\"https:\/\/rarediseases.org\/wp-content\/uploads\/2022\/04\/APS1-RFP_Final-4-26-22.pdf\"><span data-contrast=\"none\">More information and to apply<\/span><\/a><span data-contrast=\"none\">.<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:276}\">\u00a0<\/span><\/li>\n<li><span data-contrast=\"none\">With fundraising by the Maxwell Family, NORD is accepting applications for <\/span><b><span data-contrast=\"none\">one grant up to $40,000<\/span><\/b><span data-contrast=\"none\"> for scientific and\/or clinical research studies related to <\/span><b><span data-contrast=\"none\">LYS<\/span><\/b><span data-contrast=\"none\">.\u202fDeadline for letters of intent is <\/span><b><span data-contrast=\"none\">Tuesday, June 21<\/span><\/b><span data-contrast=\"none\">. <\/span><a href=\"https:\/\/rarediseases.org\/wp-content\/uploads\/2022\/04\/LYS-RFP_Final-4-26-22.pdf\"><span data-contrast=\"none\">More information and to apply<\/span><\/a><span data-contrast=\"none\">.<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:276}\">\u00a0<\/span><\/li>\n<li><span data-contrast=\"none\">With funding from the <\/span><a href=\"https:\/\/www.mmihs.org\/\" rel=\"nofollow noopener\" target=\"_blank\"><span data-contrast=\"none\">MMIHS Foundation<\/span><\/a><span data-contrast=\"none\">, NORD is accepting applications for <\/span><b><span data-contrast=\"none\">one grant of $30,000<\/span><\/b><span data-contrast=\"none\"> for scientific and\/or clinical research studies related to MMIHS .<\/span> <span data-contrast=\"none\">Deadline for letters of intent is <\/span><b><span data-contrast=\"none\">Tuesday, June 21<\/span><\/b><span data-contrast=\"none\">. <\/span><a href=\"https:\/\/rarediseases.org\/wp-content\/uploads\/2022\/04\/MMIHS-RFP_Final-4-26-22.pdf\"><span data-contrast=\"none\">More information and to apply<\/span><\/a><span data-contrast=\"none\">.<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:276}\">\u00a0<\/span><\/li>\n<\/ul>\n<p><span data-contrast=\"none\">Grants will be awarded to qualified researchers to initiate small scientific research studies or clinical trials, the results of which could be used to obtain funding from the National Institutes for Health (NIH), US Food and Drug Administration (FDA), or other funding agencies, or to attract a corporate sponsor.<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:276}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">\u201cSince 1989, NORD\u2019s grants have led to the development of two FDA-approved treatments and many peer-reviewed publications. Over 200 grants have been awarded, totaling over $9 million in approved funding. The vision behind these critical study grants is to ultimately lead to new diagnostics, treatments, and cures for rare diseases,\u201d said <\/span><b><span data-contrast=\"auto\">Aliza Fink, Director, Research Programs, NORD<\/span><\/b><span data-contrast=\"auto\">.<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:276}\">\u00a0<\/span><\/p>\n<p>To learn more or submit to the 2022 NORD Research Grants Cycle, <a href=\"https:\/\/rarediseases.org\/for-clinicians-and-researchers\/research-opportunities\/requests-proposals\/\">visit the NORD website<\/a>.<\/p>\n<p>&nbsp;<\/p>\n<p><b><i><span data-contrast=\"auto\">About the National Organization for Rare Disorders (NORD)<\/span><\/i><\/b><span data-ccp-props=\"{&quot;201341983&quot;:2,&quot;335551550&quot;:6,&quot;335551620&quot;:6,&quot;335559739&quot;:200,&quot;335559740&quot;:276}\"><br \/>\n<\/span><i><span data-contrast=\"auto\">The National Organization for Rare Disorders (NORD) is the leading independent advocacy organization representing all patients and families affected by rare diseases\u202fin\u202fthe United States. NORD began as a small group of patient advocates that formed a coalition to unify and mobilize support to pass the Orphan Drug Act of 1983. Since then, the organization has led the way in voicing the needs of the rare disease community, driving supportive policies, furthering education, advancing medical\u202fresearch,\u202fand providing patient and family services for those who need them most.\u202fTogether with over 300 disease-specific member organizations, more than 17,000 Rare Action Network advocates across all 50 states, and national and global partners, NORD delivers on its mission to improve the lives of those impacted by rare diseases. Visit\u202f<\/span><\/i><a href=\"https:\/\/rarediseases.org\/\"><i><span data-contrast=\"none\">rarediseases.org<\/span><\/i><\/a><i><span data-contrast=\"auto\">.<\/span><\/i><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335551550&quot;:6,&quot;335551620&quot;:6,&quot;335559739&quot;:160,&quot;335559740&quot;:276}\">\u00a0<\/span><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Three RFPs Now Open for Qualified Researchers through NORD\u2019s Jayne Holtzer Rare Disease Research Grants Program\u00a0 April 29, 2022, Washington, DC \u2013 Today, the National Organization for Rare Disorders (NORD\u00ae) &hellip; <\/p>\n<p class=\"link-more\"><a href=\"https:\/\/rarediseases.org\/es\/nord-announces-over-100000-in-grant-funding-available-for-rare-disease-research\/\" class=\"more-link\">Continue reading<span class=\"screen-reader-text\"> &#8220;NORD Announces over $100,000 in Grant Funding Available for Rare Disease Research&#8221;<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"footnotes":""},"categories":[504,193],"tags":[1929,1928,244,1614,2981,1667,2978,2979,2980,383,2982,414],"class_list":["post-59406","post","type-post","status-publish","format-standard","hentry","category-press-releases","category-research","tag-aps-1","tag-autoimmune-polyglandular-syndrome-type-1","tag-fda","tag-grant","tag-jayne-holtzer-rare-disease-research-grants-program","tag-levy-yeboa-syndrome","tag-lys","tag-megacystis-microcolon-intestinal-hypoperistalsis-syndrome","tag-mmihs","tag-research","tag-therapy","tag-treatment"],"acf":[],"_links":{"self":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/59406","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/comments?post=59406"}],"version-history":[{"count":0,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/59406\/revisions"}],"wp:attachment":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media?parent=59406"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/categories?post=59406"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/tags?post=59406"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}