{"id":91033,"date":"2022-09-21T12:06:11","date_gmt":"2022-09-21T16:06:11","guid":{"rendered":"https:\/\/rarediseases.org\/nord-opens-applications-for-two-new-rare-disease-research-grants\/"},"modified":"2025-12-22T14:15:23","modified_gmt":"2025-12-22T19:15:23","slug":"nord-opens-applications-for-two-new-rare-disease-research-grants","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/nord-opens-applications-for-two-new-rare-disease-research-grants\/","title":{"rendered":"NORD Opens Applications for Three New Rare Disease Research Grants"},"content":{"rendered":"<h3><i><span data-contrast=\"auto\">Since 1989, NORD has awarded over 200 grants totaling over $9 million in approved funding<\/span><\/i><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335551550&quot;:2,&quot;335551620&quot;:2,&quot;335559739&quot;:160,&quot;335559740&quot;:276}\">\u00a0<\/span><\/h3>\n<p><b><span data-contrast=\"auto\">September 21, 2022, Washington, DC<\/span><\/b><span data-contrast=\"auto\"> \u2013 Today, the National Organization for Rare Disorders (NORD\u00ae) announced new requests for proposal (RFP) for grant funding through NORD\u2019s Jayne Holtzer Rare Disease Research Grants Program. NORD provides grants for the study of diseases for which there are few other sources of funding.<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:276}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"none\">Grants will be awarded to qualified researchers to initiate small scientific research studies or clinical trials, the results of which could be used to obtain funding from the National Institutes for Health (NIH), US Food and Drug Administration (FDA), or other funding agencies, or to attract a corporate sponsor.<\/span><span data-contrast=\"auto\"> The RFPs are related to the following rare diseases:\u00a0<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:276}\">\u00a0<\/span><\/p>\n<p>Autoimmune Polyglandular Syndrome Type 1 (<a href=\"https:\/\/rarediseases.org\/rare-diseases\/autoimmune-polyglandular-syndrome-type-1\/\">APS-1<\/a>): NORD is accepting applications for <strong>one grant of $50,000<\/strong> for scientific and\/or clinical research studies related to <strong>APS-1<\/strong>.<\/p>\n<ul>\n<li>APS Type 1 is a rare genetic disorder caused by mutations of the AIRE gene. Mutations in AIRE lead to multi-organ system autoimmunity typified by three classic manifestations.<\/li>\n<li>This grant is made possible with funding from the <a href=\"https:\/\/apstype1.org\/\" rel=\"nofollow noopener\" target=\"_blank\">APS Type 1 Foundation<\/a>.<\/li>\n<li>Deadline for letters of intent is <strong>Monday, November 14<\/strong>.\u00a0<a href=\"https:\/\/rarediseases.org\/wp-content\/uploads\/2022\/04\/APS1-RFP_Final_-2nd-Release-9-7-22-1.pdf\"><span data-contrast=\"none\">More information and to apply<\/span><\/a><span data-contrast=\"none\">.<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559685&quot;:1080,&quot;335559739&quot;:160,&quot;335559740&quot;:276}\">\u00a0<\/span><\/li>\n<\/ul>\n<p><span data-contrast=\"auto\">Levy-Yeboa Syndrome (<\/span><a href=\"https:\/\/rarediseases.org\/rare-diseases\/levy-yeboa-syndrome\/#:~:text=Levy%2DYeboa%20syndrome%20(LYS),like%20eruptions%20of%20the%20skin\"><span data-contrast=\"none\">LYS<\/span><\/a><span data-contrast=\"auto\">): <\/span><span data-contrast=\"none\">NORD is accepting applications for <\/span><b><span data-contrast=\"none\">one grant up to $40,000<\/span><\/b><span data-contrast=\"none\"> for scientific and\/or clinical research studies related to <\/span><b><span data-contrast=\"none\">LYS<\/span><\/b><span data-contrast=\"none\">.\u202f<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559685&quot;:360,&quot;335559739&quot;:160,&quot;335559740&quot;:276}\">\u00a0<\/span><\/p>\n<ul>\n<li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"8\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559684&quot;:-2,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;hybridMultilevel&quot;}\" aria-setsize=\"-1\" data-aria-posinset=\"4\" data-aria-level=\"1\"><span data-contrast=\"auto\">LYS, an STXBP3-associated disease, is a very rare disease with no established foundation.<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559685&quot;:1080,&quot;335559739&quot;:160,&quot;335559740&quot;:259}\">\u00a0<\/span><\/li>\n<\/ul>\n<ul>\n<li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"8\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559684&quot;:-2,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;hybridMultilevel&quot;}\" aria-setsize=\"-1\" data-aria-posinset=\"1\" data-aria-level=\"1\"><span data-contrast=\"none\">This grant was made possible through fundraising by the Maxwell Family.\u00a0<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559685&quot;:1080,&quot;335559739&quot;:160,&quot;335559740&quot;:276}\">\u00a0<\/span><\/li>\n<li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"8\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559684&quot;:-2,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;hybridMultilevel&quot;}\" aria-setsize=\"-1\" data-aria-posinset=\"2\" data-aria-level=\"1\"><span data-contrast=\"none\">Deadline for letters of intent is <\/span><b><span data-contrast=\"none\">Monday, November 14<\/span><\/b><span data-contrast=\"none\">. <\/span><a href=\"https:\/\/rarediseases.org\/wp-content\/uploads\/2022\/04\/LYS-RFP_Final-4-26-22.pdf\"><span data-contrast=\"none\">More information and to apply<\/span><\/a><span data-contrast=\"none\">.<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559685&quot;:1080,&quot;335559739&quot;:160,&quot;335559740&quot;:276}\">\u00a0<\/span><\/li>\n<\/ul>\n<p><span data-contrast=\"auto\">Megacystis Microcolon Intestinal Hypoperistalsis Syndrome (<\/span><a href=\"https:\/\/rarediseases.org\/gard-rare-disease\/megacystis-microcolon-intestinal-hypoperistalsis-syndrome\/\"><span data-contrast=\"none\">MMIHS<\/span><\/a><span data-contrast=\"auto\">): <\/span><span data-contrast=\"none\">NORD is accepting applications for <\/span><b><span data-contrast=\"none\">one grant of $30,000<\/span><\/b><span data-contrast=\"none\"> for scientific and\/or clinical research studies related to MMIHS.<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559685&quot;:360,&quot;335559739&quot;:160,&quot;335559740&quot;:276}\">\u00a0<\/span><\/p>\n<ul>\n<li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"9\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559684&quot;:-2,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;hybridMultilevel&quot;}\" aria-setsize=\"-1\" data-aria-posinset=\"3\" data-aria-level=\"1\"><span data-contrast=\"auto\">MMIHS (or Berdon Syndrome) is an extremely rare disorder that affects the bladder and gastrointestinal system.\u00a0<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559685&quot;:1080,&quot;335559739&quot;:160,&quot;335559740&quot;:276}\">\u00a0<\/span><\/li>\n<li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"9\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559684&quot;:-2,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;hybridMultilevel&quot;}\" aria-setsize=\"-1\" data-aria-posinset=\"4\" data-aria-level=\"1\"><span data-contrast=\"none\">This grant was made possible through funding from the <\/span><a href=\"https:\/\/www.mmihs.org\/\" rel=\"nofollow noopener\" target=\"_blank\"><span data-contrast=\"none\">MMIHS Foundation<\/span><\/a><span data-contrast=\"none\">.<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559685&quot;:1080,&quot;335559739&quot;:160,&quot;335559740&quot;:276}\">\u00a0<\/span><\/li>\n<\/ul>\n<ul>\n<li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"9\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559684&quot;:-2,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;hybridMultilevel&quot;}\" aria-setsize=\"-1\" data-aria-posinset=\"1\" data-aria-level=\"1\"><span data-contrast=\"none\">Deadline for letters of intent is <\/span><b><span data-contrast=\"none\">Monday, November 14<\/span><\/b><span data-contrast=\"none\">.\u00a0 <\/span><a href=\"https:\/\/rarediseases.org\/wp-content\/uploads\/2022\/04\/MMIHS-RFP_Final-4-26-22.pdf\"><span data-contrast=\"none\">More information and to apply<\/span><\/a><span data-contrast=\"none\">.<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559685&quot;:1080,&quot;335559739&quot;:160,&quot;335559740&quot;:276}\">\u00a0<\/span><\/li>\n<\/ul>\n<p><span data-contrast=\"auto\">The NORD Jayne Holtzer Rare Disease Research Grants Program provides seed-money grants to qualified investigators for scientific and clinical research. To learn more or submit to the 2022 NORD Research Grants Cycle, <\/span><a href=\"https:\/\/rarediseases.org\/for-clinicians-and-researchers\/research-opportunities\/requests-proposals\/\"><span data-contrast=\"none\">visit the NORD website<\/span><\/a><span data-contrast=\"auto\">.<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:276}\">\u00a0<\/span><\/p>\n<p><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335551550&quot;:6,&quot;335551620&quot;:6,&quot;335559739&quot;:200,&quot;335559740&quot;:276}\">\u00a0<\/span><\/p>\n<p><b><i><span data-contrast=\"auto\">About the National Organization for Rare Disorders (NORD)<\/span><\/i><\/b><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335551550&quot;:6,&quot;335551620&quot;:6,&quot;335559739&quot;:200,&quot;335559740&quot;:276}\"><br \/>\n<\/span><i><span data-contrast=\"auto\">The National Organization for Rare Disorders (NORD) is the leading independent advocacy organization representing all patients and families affected by rare diseases\u202fin\u202fthe United States. NORD began as a small group of patient advocates that formed a coalition to unify and mobilize support to pass the Orphan Drug Act of 1983. Since then, the organization has led the way in voicing the needs of the rare disease community, driving supportive policies, furthering education, advancing medical\u202fresearch,\u202fand providing patient and family services for those who need them most.\u202fTogether with over 330 disease-specific member organizations, more than 17,000 Rare Action Network advocates across all 50 states, and national and global partners, NORD delivers on its mission to improve the lives of those impacted by rare diseases. Visit\u202f<\/span><\/i><a href=\"https:\/\/rarediseases.org\/\"><i><span data-contrast=\"none\">rarediseases.org<\/span><\/i><\/a><i><span data-contrast=\"auto\">.<\/span><\/i><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335551550&quot;:6,&quot;335551620&quot;:6,&quot;335559739&quot;:160,&quot;335559740&quot;:276}\">\u00a0<\/span><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Since 1989, NORD has awarded over 200 grants totaling over $9 million in approved funding\u00a0 September 21, 2022, Washington, DC \u2013 Today, the National Organization for Rare Disorders (NORD\u00ae) announced &hellip; <\/p>\n<p class=\"link-more\"><a href=\"https:\/\/rarediseases.org\/es\/nord-opens-applications-for-two-new-rare-disease-research-grants\/\" class=\"more-link\">Continue reading<span class=\"screen-reader-text\"> &#8220;NORD Opens Applications for Three New Rare Disease Research Grants&#8221;<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"footnotes":""},"categories":[232,4066,4364,193],"tags":[1929,1928,244,1471,2981,1667,2978,2979,2980,383,414],"class_list":["post-91033","post","type-post","status-publish","format-standard","hentry","category-advocacy","category-press-releases-advocacy","category-press-releases","category-research","tag-aps-1","tag-autoimmune-polyglandular-syndrome-type-1","tag-fda","tag-grants","tag-jayne-holtzer-rare-disease-research-grants-program","tag-levy-yeboa-syndrome","tag-lys","tag-megacystis-microcolon-intestinal-hypoperistalsis-syndrome","tag-mmihs","tag-research","tag-treatment"],"acf":[],"_links":{"self":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/91033","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/comments?post=91033"}],"version-history":[{"count":0,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/91033\/revisions"}],"wp:attachment":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media?parent=91033"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/categories?post=91033"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/tags?post=91033"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}