{"id":91034,"date":"2022-09-28T12:30:35","date_gmt":"2022-09-28T16:30:35","guid":{"rendered":"https:\/\/rarediseases.org\/rare-cancer-day-2022-showcases-critical-community-awareness-and-advocacy\/"},"modified":"2025-12-22T14:15:23","modified_gmt":"2025-12-22T19:15:23","slug":"rare-cancer-day-2022-showcases-critical-community-awareness-and-advocacy","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/rare-cancer-day-2022-showcases-critical-community-awareness-and-advocacy\/","title":{"rendered":"Rare Cancer Day 2022 Showcases Critical Community Awareness and Advocacy"},"content":{"rendered":"<p><b><span data-contrast=\"auto\">Washington, DC, September 28, 2022<\/span><\/b><span data-contrast=\"auto\">\u2014 This week, the rare disease community will celebrate the fourth annual Rare Cancer Day. Spearheaded by the National Organization for Rare Disorders (NORD\u00ae) Rare Cancer Coalition\u2122, Rare Cancer Day is observed on September 30 to highlight the challenges patients with rare cancers face and to unify individuals living with rare cancers for awareness and early diagnosis.\u00a0<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:240}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">\u201cIn 2018, Rare Cancer Day was established as a global commitment to establish effective treatment options for all rare cancers,\u201d said\u202f<\/span><b><span data-contrast=\"auto\">Jim Palma<\/span><\/b><span data-contrast=\"auto\">, Co-Chair of NORD\u2019s Rare Cancer Coalition\u2122 and\u202f<\/span><span data-contrast=\"auto\">Executive Director, TargetCancer Foundation<\/span><span data-contrast=\"auto\">. \u201cNow in our fourth year, we are grateful for the continued opportunity to establish partnerships, raise awareness, and drive community action to build a bright future for individuals, organizations, and families facing cancer.\u201d\u202f<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:259}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">NORD is asking the world to commemorate the day by using the #RareCancerDay hashtag on social media, posting messages of support for the community and sharing\/retweeting facts about rare cancers.\u00a0<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:240}\">\u00a0<\/span><\/p>\n<ul>\n<li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"3\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559684&quot;:-2,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;hybridMultilevel&quot;}\" aria-setsize=\"-1\" data-aria-posinset=\"1\" data-aria-level=\"1\"><span data-contrast=\"auto\">Approximately one in five people living with cancer in the United States are diagnosed with a rare cancer.\u00a0<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:240}\">\u00a0<\/span><\/li>\n<li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"3\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559684&quot;:-2,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;hybridMultilevel&quot;}\" aria-setsize=\"-1\" data-aria-posinset=\"2\" data-aria-level=\"1\"><span data-contrast=\"auto\">All pediatric cancers are rare.\u00a0<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:240}\">\u00a0<\/span><\/li>\n<li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"3\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559684&quot;:-2,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;hybridMultilevel&quot;}\" aria-setsize=\"-1\" data-aria-posinset=\"3\" data-aria-level=\"1\"><span data-contrast=\"auto\">The five-year survival rate is lower for patients with a rare cancer than for those diagnosed with a more common cancer.\u00a0<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:240}\">\u00a0<\/span><\/li>\n<li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"3\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559684&quot;:-2,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;hybridMultilevel&quot;}\" aria-setsize=\"-1\" data-aria-posinset=\"4\" data-aria-level=\"1\"><span data-contrast=\"auto\">Efforts to increase awareness of rare cancers among patients and clinicians could lead to earlier detection and improvements in survival.<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:240}\">\u00a0<\/span><\/li>\n<\/ul>\n<p><span data-contrast=\"auto\">\u201cThe Rare Cancer Coalition is thrilled to propel a robust conversation on social media and in the public sphere to celebrate the 4<\/span><span data-contrast=\"auto\">th<\/span><span data-contrast=\"auto\">\u202fannual Rare Cancer Day,\u201d said\u202f<\/span><b><span data-contrast=\"auto\">John Hopper<\/span><\/b><span data-contrast=\"auto\">, Co-Chair of NORD\u2019s Rare Cancer Coalition\u2122 and President Emeritus, Fibrolamellar Cancer Foundation. \u201cOur goal is to strengthen our community, propel research and therapies, and inspire stories so that one day a Rare Cancer Day is obsolete.\u201d\u202f<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:259}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Throughout the months of August and September, NORD has highlighted the inspiring stories of the rare cancer community <\/span><a href=\"https:\/\/rarediseases.org\/category\/voices-of-rare-cancer\/\"><span data-contrast=\"none\">on the NORD blog<\/span><\/a><span data-contrast=\"auto\">. For more information on #RareCancerDay or to download public resources, including a social media toolkit, visit <\/span><a href=\"https:\/\/rarediseases.org\/get-involved\/rare-cancer-coalition\/rare-cancer-day\/\"><span data-contrast=\"none\">NORD\u2019s website<\/span><\/a><span data-contrast=\"none\">.<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:240}\">\u00a0<\/span><\/p>\n<p style=\"text-align: center;\"><span data-contrast=\"auto\">###<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335551550&quot;:2,&quot;335551620&quot;:2,&quot;335559739&quot;:160,&quot;335559740&quot;:240}\">\u00a0<\/span><\/p>\n<p><b><i><span data-contrast=\"none\">About the National Organization for Rare Disorders (NORD<\/span><\/i><\/b><b><i><span data-contrast=\"none\">\u00ae<\/span><\/i><\/b><b><i><span data-contrast=\"none\">)<\/span><\/i><\/b><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:240}\"><br \/>\n<\/span><i><span data-contrast=\"auto\">The National Organization for Rare Disorders (NORD) is the leading independent advocacy organization representing all patients and families affected by rare diseases<\/span><\/i><i><span data-contrast=\"auto\"> in the United States. <\/span><\/i><i><span data-contrast=\"auto\">NORD began as a small group of patient advocates that formed a coalition to unify and mobilize support to pass the Orphan Drug Act of 1983. Since then, the organization has led the way in voicing the needs of the rare disease community, driving supportive policies, furthering education, advancing medical<\/span><\/i> <i><span data-contrast=\"auto\">research, and providing patient and family services for those who need them most. Together with over 330 disease-specific member organizations, more than 17,000 Rare Action Network advocates across all 50 states, and national and global partners, NORD delivers on its mission to improve the lives of those impacted by rare diseases. Visit<\/span><\/i> <a href=\"https:\/\/www.rarediseases.org\/\"><i><span data-contrast=\"none\">rarediseases.org<\/span><\/i><\/a><i><span data-contrast=\"none\">.<\/span><\/i><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:259}\">\u00a0<\/span><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Washington, DC, September 28, 2022\u2014 This week, the rare disease community will celebrate the fourth annual Rare Cancer Day. Spearheaded by the National Organization for Rare Disorders (NORD\u00ae) Rare Cancer &hellip; <\/p>\n<p class=\"link-more\"><a href=\"https:\/\/rarediseases.org\/es\/rare-cancer-day-2022-showcases-critical-community-awareness-and-advocacy\/\" class=\"more-link\">Continue reading<span class=\"screen-reader-text\"> &#8220;Rare Cancer Day 2022 Showcases Critical Community Awareness and Advocacy&#8221;<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"footnotes":""},"categories":[232,505,4066,4364,2754],"tags":[280,1712,798,2046,2045,4083,4082,796],"class_list":["post-91034","post","type-post","status-publish","format-standard","hentry","category-advocacy","category-patient-stories","category-press-releases-advocacy","category-press-releases","category-voices-of-rare-cancer","tag-awareness","tag-fibrolamellar-cancer-foundation","tag-rare-cancer","tag-rare-cancer-coalition","tag-rare-cancer-day","tag-rare-cancer-day-2022","tag-september-30","tag-targetcancer-foundation"],"acf":[],"_links":{"self":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/91034","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/comments?post=91034"}],"version-history":[{"count":0,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/91034\/revisions"}],"wp:attachment":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media?parent=91034"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/categories?post=91034"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/tags?post=91034"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}