Seeing to the Continuity of Healthcare in an era of Physical Distancing Written by Sean Roberts on September 30, 2020
Payer Survey Highlights Confusion About the Definition and Utility of Real World Evidence in Rare Disease Written by Sean Roberts on September 30, 2020
Managing Online Survey as a Successful Global Rare Disease Patient Community Building Model Written by Sean Roberts on September 30, 2020
GM2DR – The Tay Sachs and Sandhoff Disease Multinational Patient Reported Data Registry Written by Sean Roberts on September 30, 2020
