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2016 ECD Patient and Family Conference

September 16, 2016

ECD Global Alliance members are invited to attend the International ECD Patient and Family Gathering scheduled for September 16, 2016 in Paris, France. 

We are looking forward to your attendance. Please join us for a welcome dinner reception on the evening of September 15, 2016, invited guests are medical professionals, patients and their families. The Patient & Family Gathering, scheduled to begin September 16, will provide opportunities to interact with the ECD medical research community and others in the health field.  Sessions will be held on topics of interest for both patients and their families. Additionally, we will have a social for attendees on the evening of September 16. 

The event will be held at the Paris Marriott Rive Gauche Hotel & Conference Center. Sleeping rooms have been blocked for event attendees at a rate of 250 EUR for a single guest/night and 265 EUR for two guest/night.  All rooms are assigned one bed unless otherwise noted in your reservation. To find out current conversion rates from Euro to other currencies, please see a currency conversion calculator. 


This is not a NORD sponsored event. This event is being hosted by a NORD member organization. 


Paris Marriott Rive Gauche Hotel & Conference Center
17 Boulevard Saint-Jacques
Paris, 75014 France
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