The FIRST National Conference offers the rare opportunity to learn from ichthyosis & related skin type experts. Experts. There are only a few in the country, and you can meet them, one-on-one! Free, fifteen minute clinical appointments are even available!
What can you expect from this conference?
Surround Yourself with Affected Families & Individuals – For once, ichthyosis is the majority. You’ll see people with your type of ichthyosis in the elevator and in the halls. You’ll see people putting lotion on everywhere. Kids holding hand with others and feeling comfortable. Through casual encounters, formal presentations, and in-depth conversations, you will feel it and see it: you are not alone. This, by itself, is a life-changing experience.
Make Friends that Last a Lifetime – Many parents feel overwhelmed with everything that comes along with an ichthyosis diagnosis, and the “ichthyosis family” is a support network that runs far and wide. At the conference you will no doubt spark connections for a lifetime.
Get ideas – Did you know that some people use a Dremel drill for their feet? That sleeping with surgical gloves can help your cream work? That UV rays are good for some types of ichthyosis but not for others? Some of the most effective treatments I’ve found have been from suggestions at the conference.
Stay In-the-Know – You’ll hear all the latest in research, from the scientists themselves! You’ll learn what’s new with FIRST, and how to get involved. Plus, you’ll find answers to issues like making special accommodations at school, how to spot an infection, or finding the best way to explain ichthyosis to a classroom or employer.
See Your Future –New parents with affected toddlers can meet happy and adjusted teens with ichthyosis. Young adults can talk with 30-somethings and adults can visit with seniors and find out what issues and solutions they’ve found for aging with ichthyosis.
Inspire Others – Your strength with other new parents, other affected people, and even the dermatologists can be empowering to you. I’ll never forget how strong I felt when I was able to lift up a room full of parents just by sharing my own story.
Learn more and register for this event here.