Our 2016 FOD/OAA International Metabolic Conference is for parents, family members, affected individuals, professionals and exhibitors that have an interest in Metabolic Disorders.
It is only through generous donations and sponsorships that the FOD Group and OAA are able to offer such an important opportunity every two years to Families and Professionals eager to learn more about our disorders. Our premier Sponsor/Host is The Metabolic Clinic at Children’s Hospital Colorado and University of Colorado School of Medicine
If you are interested in helping our efforts as a donor or a Conference Sponsor please refer to each Group’s website linked above or contact Kathy Stagni directly at [email protected] or call 763.559.1797!
Fatty Oxidation Disorders and Organic Acidemias are a group of rare metabolic disorders whereby fatty acids and protein, respectively, cannot be broken down in the body to be used as energy, especially in times of fasting or illness, and are treated through dietary changes and medications. When undiagnosed, severe medical complications and/or death can occur.
The importance of our Family Conference is to allow our members to meet other parents and professionals and learn more about their own or their child’s rare metabolic disorder. The focus for this conference is for Families to learn more about the medical management, nutrition and the social needs of caring for yourself or a child with a chronic disorder, specifically those with rare metabolic disorders. On Friday, we will have two separate sessions – one for the FOD Group and one for the OAA Group and there will be a Friday Night Reception from 6-8pm for Families and Speakers. Saturday we will meet in our separate rooms for networking, breakout sessions, and then finish up jointly with our Professional Panel Question & Answer time.
The conference is a wonderful opportunity for Families to meet each other and have the opportunity to speak with professionals on an informal level. Children are encouraged to attend the Friday night Reception and we offer a variety of snacks and drinks during the Reception.Breakfast and Lunch and snacks are provided to all Registrants on FRIDAY and there will be ONLY Breakfast and snacks on Saturday – the Conference ends at 12 noon. There will be NO LUNCH served on Saturday.
This is not NORD sponsored event. This event is being hosted by a NORD member organization.