The 2018 FOD/OAA International Metabolic Conference, organized by the Organic Acidemia Association, is for parents, family members, affected individuals, professionals and exhibitors that have an interest in Metabolic Disorders.
Fatty Oxidation Disorders and Organic Acidemias are a group of rare metabolic disorders whereby fatty acids and protein, respectively, cannot be broken down in the body to be used as energy, especially in times of fasting or illness, and are treated through dietary changes and medications. When undiagnosed, severe medical complications and/or death can occur.
The importance of the Family Conference is to allow members to meet other parents and professionals and learn more about their own or their child’s rare metabolic disorder. The focus for this conference is for Families to learn more about the medical management, nutrition and the social needs of caring for yourself or a child with a chronic disorder, specifically those with rare metabolic disorders. On Friday, there will be two separate sessions – one for the FOD Group and one for the OAA Group and there will be a Friday Night Reception from 6-9pm for Families and Speakers. Saturday, there will be a joint FOD/OAA session, Group pictures taken with FOD and OAA Tshirts, and a Professional Panel Question & Answer time. The event will end with a beautiful Ending Ceremony Video!
The conference is a wonderful opportunity for Families to meet each other and have the opportunity to speak with professionals on an informal level. Children are encouraged to attend the Friday night Reception and a variety of snacks and drinks will be offered during the Reception.