Since 2015, the Frank H. Netter MD School of Medicine at Quinnipiac University has hosted the Rare Disease Day Symposium, providing an opportunity for patients, family members, clinicians, and researchers to share their stories, research and insights into the development of novel therapeutics. Our mission is to promote inter-professional healthcare education and awareness of and advocacy for the rare disease community with an event that has also become a powerful learning opportunity for students and professionals highlighting the unique needs of individuals affected by rare disorders.
This year’s event is a collaboration between the Frank H. Netter MD School of Medicine, Connecticut Children’s Research Institute and Jackson Labs. It promises to be a very exciting event with the traditional programming of keynote speakers, the patient/caretaker panel, reception/art exhibit, and new to this year’s event is a roundtable showcasing all the behind-the-scenes activities that go into executing a clinical trial, including the clinicians, patient advocates, patients, and the clinical trials team. There will also be an option for 3.5 CME credits.
All programming information will be posted on our website, which will be live in advance of the event. www.QU.edu/RDD2023