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Advocating for a Rare Disease Advisory Council in Your State

March 4 @ 2:00 pm - 3:00 pm

Do you want to help advocate for a Rare Disease Advisory Council (RDAC) in your state? An RDAC helps address the needs of rare patients and families by giving them and other advocates an opportunity to advise state government officials on ways to address the unique challenges faced by the rare disease community.

NORD is excited to launch our second RDAC toolkit titled, “Advocating for a Rare Disease Advisory Council in Your State.” This toolkit will help you navigate the legislative process and offers a step-by-step advocacy guide as well as additional resources to support an RDAC bill.
Join us for a one hour webinar to learn more about this toolkit!

This webinar is free and intended for patients, caregivers, advocates, and the general public.  You do not need to be a part of a NORD member organization to participate.