Alpha-1 Rare Disease Day Walk and Ice Cream Social in Orlando, FL or walk virtually!
In- Person: Join us February 25th at 2:45 PM after the Alpha-1 Orlando Education Day to celebrate what it means to be RARE!
Delta Hotels Orlando Celebration, 2900 Parkway Blvd, Kissimmee, FL 34747
Rare Disease Day takes place on the last day of February each year. The goal of this day is to raise awareness and generate positive action for the rare disease community. On February 28th, 2023, the Alpha-1 Foundation – along with Alphas, patient organizations, politicians, caregivers, medical professionals, researchers, and industry – will come together in solidarity to raise awareness of Alpha-1 Antitrypsin Deficiency as one of these rare diseases.
The Alpha-1 Foundation’s Rare Disease Day Walk helps support the mission to find a cure for Alpha-1. Funds from this event will be used to support research and related programs.