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Arizona Rare Disease Day 2019

February 28, 2019 @ 11:30 am - 2:00 pm

During the event, advocates will have the opportunity to network with other rare disease patients, caregivers and other health care advocates. In addition, individuals will visit the Executive Office of the Governor to pick up the Rare Disease Day proclamation signed by Douglas A. Ducey. The group will attend the opening session of the afternoon meetings of the Arizona State Legislature to receive formal recognition as rare disease advocates in the Arizona House of Representatives and Arizona State Senate. The Rare Disease Day proclamation will be read aloud in both chambers. Upon recognition and inaugural reading of the proclamation, the group will exit the Public Gallery and continue networking and sharing about rare.



February 28, 2019
11:30 am - 2:00 pm
Event Category:


Arizona State Capitol, Lawn
1700 W Washington
Phoenix, AZ 85007 United States
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