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Barriers to Diagnosis: Women and X-linked Diseases Webinar

February 8 @ 7:00 pm - 8:00 pm

This webinar is designed for women with x-linked genetic diseases, healthcare providers, and caregivers and addresses the challenges women with X-linked diseases face. Challenges and barriers to diagnosis and care, as well as an explanation of women and manifestation of symptoms of X-linked diseases will be discussed. There will also be a time for Q&A at the end. Presenters will include Dr. Rebecca Spencer (anesthesiologist who has researched X-linked inactivation), Taylor Kane (founder of Remember the Girls – an organization dedicated to women who carry X-linked diseases) and Kristen Angell, Associate Director of Advocacy, NORD.