Running for Rare, NORD’s signature charity marathon team, will be participating in the 2017 Boston Marathon. Applications for this marathon are closed.
When you join Running for Rare, you are joining a group of individuals who are passionate and committed to an important cause. Running for Rare offers a dynamic platform for our dedicated charity runners to raise funds and increase awareness for the 1 in 10 Americans with rare diseases. Funds raised by Running for Rare pay for medical testing for individuals who have exhausted all possible avenues to receive a medical diagnosis.
The hallmark of Running for Rare that sets it apart from other charity teams is the Rare Community Partners program, which connects runners with individuals affected by rare diseases. Each partnership creates a relationship between the runner and patient partner, and provides a platform to share stories, raise awareness, find support, and connect with others going through similar challenges.