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Community Heroes Rare Disease Day Panel Discussion

February 28 @ 6:00 pm - 8:00 pm

Rare Disease Day at Community Heroes organization is part of a global observance to raise awareness of rare diseases and their impact on patients and families. Topics: Advocacy, Research, Myosin Deficient Muscular Dystrophy, visible VS invisible Diseases: The event is free and open to the public, including patients, their families and caregivers, healthcare providers, research professionals, advocates, and stakeholders. Registration: To register visit, search for “Community Heroes Rare Disease Day Virtual Event” and find our event, More Information: