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Cystinosis Awareness Day

May 7

On May 7, 2023 the cystinosis community will come together in honor of Cystinosis Awareness Day (CAD). Started in 2018, Cystinosis Awareness Day was created to bring attention to this rare disease. Educating the general public and medical communities about cystinosis has the power to create a better future for the ~2,000 diagnosed and those awaiting a diagnosis. This year the Cystinosis Research Network has partnered with rare advocacy groups to share stories across conditions. Their hope is to reach other rare families and individuals to let them know they are not in this fight alone. Learn more here: https://cystinosis.org/event/cystinosis-awareness-day/

Details

Date:
May 7
Event Category:
Website:
https://cystinosis.org/event/cystinosis-awareness-day/

Organizer

Cystinosis Research Network
Phone:
847-735-0471
Email:
info@cystinosis.org
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