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Distinctive: Discussion of Disparities and Diversity in Sarcoidosis Webinar

August 17, 2021 @ 5:00 pm - 8:00 pm

Sarcoidosis is known as the snowflake disease because no two cases are alike. To fully understand sarcoidosis, we must understand the differences in each patient’s experience. Sarcoidosis is underrepresented in clinical trials because of the complexities associated with these disparate experiences.

In this first of its kind discussion, FSR and STS are bringing together patients, experts, and leading organizations to explore how to improve the representation and inclusion in clinical trials and the challenges associated with a rare disease like sarcoidosis. We will explore ways we can expand and adjust our understandings of clinical trial design and implementation in order to be more accommodating to a wide range of patient experiences. The significant burden that sarcoidosis places on African Americans will be discussed along with other diverse experiences in this complex rare disease.