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Driving Cures for Rare Diseases: The Role of Patient Nonprofits in Engaging Industry and Academic Researchers to Accelerate Drug Development

March 31, 2021 @ 2:30 pm - 3:30 pm

Patients and caregivers should be included as equal partners in the drug development process, particularly for rare conditions where limitations on what we know about a disease may exist. Rare disease nonprofit organizations can drive research and data collection efforts that may be leveraged to guide researchers toward meaningful outcomes and patient-centric clinical trial designs. 

Join us to learn how community-led collaborations with industry and academic researchers can accelerate drug development by encouraging data sharing and collaborative engagement with initiatives, such as the Rare Disease Cures Accelerator – Data and Analytics Platform (RDCA-DAP). Discover how rare disease nonprofits can play a role in advancing treatments and cures for their communities.

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March 31, 2021
2:30 pm - 3:30 pm
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