Join the Ehlers-Danlos Support Group of Jacksonville for a special Rare Disease Day Social. Join the Zoom meeting to join in the conversation. The social is open to all.
Join Zoom Meeting:
Via Phone: 646-558-8656
Meeting ID: 313 494 237
For more information please contact support group leader, Rachel Goodman at (904) 703-1190.
The mission of the Ehlers-Danlos Support Group is to support all individuals affected by Ehlers-Danlos Syndrome and related comorbidities in the Jacksonville, Florida region through education, community & outreach. We were established in 2018 after seeing a need for support in our region. We incorporated as a nonprofit with the State of Florida in 2019. We hold two virtual meetings per month and have a private Facebook discussion group where members can converse, access the member recommended provider list and stay up to date on meetings. Learn more about our organization at www.edsjacksonville.org or via our Facebook group https://www.facebook.com/groups/371654683684562. The group is also open to those who live outside the region who come to Jacksonville for medical care. Meetings are held on the first Saturday of every month at 1pm and again on the last Sunday of the month at 6pm.